Sunday, December 9, 2012
I have been able to get out many days each week with the help of friends and family. Once again, Great Harvest is a favorite spot. I feel like I am part of the staff down there because I am there so often. Currently, I am experiencing a change in my left leg. It has become weaker and harder to control which makes it more difficult to use my walker. I am hoping that my left leg doesn't get any weaker than it already is. I am trying to avoid using the wheelchair as long as I possibly can.
We had a great time today with our family as all of our children came to the house and spent much of the day with me. They went out and bought a Christmas tree while my wife prepared a wonderful brunch. We watched my daughter-in-law, Amber, and son, Michael, ceremoniously put lights on the tree. This is the first year we have had lights on the tree since our kids were little. After that, we all watched my granddaughter, Rilie (age 22 months), put decorations on the lower one foot of the tree while my other granddaughter, Joss (age 9 months), looked on fascinated. The rest of the ornaments were put on the higher branches by our kids. Our kids gave me a wonderful gift today as they started a new tradition for our annual "Tree Day".
Wednesday, November 7, 2012
November 7th
The swelling of my legs has gone down, so they have taken me off of Lasis. I was excited about this because it means I get to take one less pill. One of the problems I have been having is my lack of sleep. I have tried two sleeping pills the last couple of nights and it has had no effects. So tonight I am going to take three pills and if that does not work I will take four pills the following night. If that doesn't work, they are going to have to figure out something different so I can get some semblance of sleep. The only question they could not answer was about the shooting pain that goes through my right foot, which is like getting an electrical shock. They said that it was a result of the tumor but they had no answer to it.
So all in all, the day was a very good day. I will continue to get around using my walker and monitor my condition on a daily basis. I know all of your thoughts and prayers have helped and I ask you to continue them. I love you all.
Friday, November 2, 2012
Wednesday I had my CT scan done. During the scan, the electricity went off in the hospital. I was so unaware that I thought that it was part of the procedure. After the scan, we went down to the Center for Health and Healing (where Tiffany, Michael, and Amber met us) for my appointment with the doctor helping me deal with the pain. We then met with my chemo doctor who told us the results of the CT scan. The positive is that the tumor has not grown at all and it is the same as it was a month ago. Also, the cancer is not in any of my organs. However, they found some shadowing on my hip bone which is a cause for concern. Because of this, I had a bone scan done Thursday morning at OHSU. Kath and brother Brad were allowed to watch this procedure because it did not involve x-rays or any radiation. They did a full body scan which lasted eighteen minutes, then did a three minute scan of one side of my skull, and then another three minutes on the other side. Really enjoyed all the doctors, technicians, etc in the nuclear medicine department. Now I wait until late next Wednesday to see if anything shows up. All my doctors will conference about the results before I see them. Basically, if they find anything, they will use radiation or chemo to treat it.
Thursday, October 18, 2012
Friday, October 5, 2012
The next appointment was meeting with my oncologist. He was pretty blunt. He told us that the tumor has been growing. The hope is that in the next two weeks, the radiation will act on the tumor and stop its growth. Our doctor was not very surprised about the events of last weekend. As he told us, the symptoms that I had are probably related to the tumor. He has referred me to a spine rehabilitation doctor to help us with symptoms. I will be seeing that doctor is about two weeks. I am scheduled for a CT scan of my chest, abdomen, and pelvis at the end of this month. That will reassure us that the tumor has stayed in one place.
It's amazing how I feel up and down day to day and minute to minute. The key is to stay more up than down. I am lucky to have such a good support system that helps me through those tough times. Your comments are SO appreciated. Thank you one and all!
Saturday, September 29, 2012
Wednesday, September 26, 2012
Thursday, September 13, 2012
Wednesday, September 5, 2012
Friday, August 24, 2012
Monday, August 13, 2012
Wednesday, August 8, 2012
Tuesday, July 31, 2012
Saturday, July 28, 2012
Wednesday, July 25, 2012
Thursday, July 19, 2012
Tuesday, July 10, 2012
This week I am going to see if I can get out for longer periods of time and work at attempting to sit up a bit. Sitting in a chair has been the real problem so far. I can sit in a recliner at a certain angle, but not close to 90 degrees. My days allow me to be comfortable around 95% of the time, with only about 5% of pain spikes. I am able to work with upper body weights before I get up in the morning. Kath and I picked up some larger weights today, increasing my total by 5 pounds, that I will begin using. The idea is to try to increase my strength. I want my physical part to catch up with my mental part! Again I want to thank all that are keeping up with my condition. I will never quit reminding all that YOU are so important to my recovery. As an individual we can only do so much and everyone needs a shoulder(s) to lean on. As the cliche goes: there is no I in TEAM. You are appreciated more than you know!
Saturday, July 7, 2012
Thursday, June 28, 2012
Friday, June 15, 2012
Friday, June 8, 2012
Thursday, June 7, 2012
Saturday, May 26, 2012
I only have two more weeks of work through Western Oregon University for the school year. I've been able to do this effectively due to my wife driving me to my schools and helping me get through the doors. I appreciate Barry taking me last week. Thanks to my wife and Barry, we've been able to put ramps on both the back and front doors, additional handles in the shower, and an elevated toilet seat. All these improvements have helped a lot. I am learning to adapt to not being able to do many things. I cannot sit for any length of time without pain. The people at Costco wondered about me last night when we went to eat pizza. Since I cannot sit for very long, I would lay on the bench for a bit while I ate and then I would sit for a little bit and then lay back down.
As always, I appreciate all you thoughts and comments. You are all appreciated.
Monday, May 7, 2012
Friday, April 27, 2012
I was able to work on Thursday with some degree of discomfort. When I got home, my doctor called to let me know the results of the MRI and the suggestions my team of doctors. He told me that the MRI showed that there was insignificant growth of the tumor and that I would continue the chemo next week. He also referred me to a neurologist. I guess there is a possibility that he could deaden some of the nerves that are causing the pain. No pain would be nice. The other side of the coin would be that I would never recover any use from the nerve....it would be gone forever. He also said that I may never get the nerve use back anyway. We will be anxious to hear what the neurologist has to say before any decision is made. He also referred me to a rehabilitation doctor. He will help me work around the pain and learn to walk more efficiently. Needless to say, we have a lot going on right now.
The big positive in all of this is that the tumor has not grown very much and we actually have options to deal with the pain. We'll continue to keep you posted.
Thursday, April 12, 2012
Friday, April 6, 2012
Thursday, March 29, 2012
Friday, March 23, 2012
Saturday, March 10, 2012
Thursday, March 1, 2012
February 23rd
(sorry for the delay-my poster has been preoccupied)
I just returned from my first trip to the therapist at OHSU. I am having a very difficult time walking correctly and keeping my balance. My walking problem is coming from the fact that my right calf muscle is very weak, so I am using my heels to push off with as opposed to my toes. The toes are curling and I need to learn to relax them. Several of the exercises are designed to help me in this area. I am also to begin a series of exercises to strengthen my calf muscle. The doctors also told me that my 45 minutes on the stairmaster and eliptical are too long. So I will now do 15 minutes on the stairmaster, 15 minutes on the eliptical, and 15 minutes on the stationary bike (yuck!). They also said I could swim and Kath, Tory, and I both just laughed! I swim like a rock, so that will not be happening. As for my pain, I am able to do my supervision work during the day and run errands with Kath and only feel a bit of pain on a 1 to 2 level (10 point scale). The evenings when I relax is the bigger issue. I've had to resort to taking a pain med around 11pm or after. This is when I have experienced pain at levels 5 - 8. Being someone that has never used medicine, this has been a hard pill to swallow (a little play on words!). Mentally I am doing fine. I have such a fantastic wife, family, and friends that give me constant support. As I have said before, this is a war and all of these obstacles are the battles and I plan to fight each one. I will continue to keep you updated and I really do appreciate all that read this and give me your thoughts!
Thursday, February 9, 2012
February 9th
Thursday, February 2, 2012
February 2nd
I remain in good care, as always, from OHSU. I appreciate all that they are doing. My biggest thanks goes to all of you who are sending positive thoughts my way. I will continue to keep you informed of my progress-as long as my daughter Tiff's typing skills hold out. I am especially grateful for my wife and brother Brad going to all of my appointments the last few days. An extra set of ears is always good.