After 3 in a half weeks of hassling with insurance companies, one of them agreed to help with costs of medication (about time). I am very relieved to finally have the medication and I am now on day three of taking the medicine. I have to keep a log of any side effects that I have from the medication. I go in in two weeks from now to meet with my doctor at OHSU to see how I am handling the side effects. If I am doing okay, they will wait for less than two months to do the MRI to see if the medication is having an effect on the sarcoma. I am feeling really good except for the lack of balance and being able to walk smoothly. This condition is caused because of the sarcoma pushing on the nerves. Thursday, we go in to meet with an orthopedic surgeon to talk about a procedure they might be able to do to relieve this problem. Sitting and standing is causing me some pain and discomfort which causes me to lay on the couch for quite a bit (those who know my dad know that this is not something he enjoys to do!). I am however, able to do weights and an hour on the stair master/eliptical. So the fact that I can still exercise is a positive. I am still able to do all of my activities, just not for as long as I used to be able to do them.
Again, I have the best nurse in the world, my wife, and she is taking care of me making sure I am doing all that I am supposed to be doing. We know we will get through this, it is just another battle we have to face. With the help of family and friends, we are ready to be successful.
**Our dad has a strength of heart and determination that many only dream to have. He is a remarkable man and has the most compassionate and loving wife there is. Together, these two will make it through this. Their love and support of one another and the prayers and love of their family and friends will guide them through this time. Thank you to everyone for your prayers!
