February 9th

Yesterday I had two more doctors added to the "Take Care of Ron" medical team! My wife (Kath), brother (Brad), son (Michael), daughter-in-law (Amber), and I attended my hour and a half consultation with two doctors in the pain management clinic. They were extremely thorough and explained all the options open to me. Like all the doctors that have worked with me at OHSU, they were very knowledgeable and wonderful to work with. On their recommendation, I am increasing the amount of pain nerve blocker that I have been on, in hopes of eliminating the use of Vicodin at night, which one can get dependent on. Currently I have quite a number of pills that I have to take a day (14). Kath has a system worked out, making sure I do not miss one pill! During my consultation, they tested my balance, among other things, and discovered that I don't have any. Their biggest fear is that I might take a fall, so I have to move slowly and concentrate on lifting my legs when I move. As they pointed out, someone as active as I have been through my life, it is extremely difficult mentally when you can't continue at that level. They have suggested that I continue to do activities where I don't lift my feet. I am able to use the eliptical machine, old stairmaster where you just raise your feet while in the footholds, and stationary bike. I also will schedule Physical Therapy and Physical Medicine and Rehabilitation consultations. They will show me exercises and activities I can do to help with my balance. The thing that I was most pleased with is that this is being set up for long term. They reminded me that this sarcoma is slow moving and that they are developing a longitudinal plan. I like those type of reassurances. Currently I am moving very slowly (which is extremely frustrating for, in my wife's terms, "fast Ron") , but am able to continue to work supervising student teachers through Western Oregon University. I find that when I concentrate on observing student teachers, that I don't have much pain. The problem is at night, when I try to sleep. That is when I notice the pain and it keeps mt awake, so I have to take the Vicodon (usually around 11:00. Four hours later, I wake in pain, so Kath has to get up and give me another dose. I feel bad that she is not getting any sleep, because she is always aware of how I am doing. She is incredible.

I appreciate all that are reading this entry and I do count all your comments, thoughts and blessings as a gift. I love you all and I will keep you posted!