Updates on Ron Carey

February 9th

2012-02-09T16:16:00.000-08:00

Yesterday I had two more doctors added to the "Take Care of Ron" medical team! My wife (Kath), brother (Brad), son (Michael), daughter-in-law (Amber), and I attended my hour and a half consultation with two doctors in the pain management clinic. They were extremely thorough and explained all the options open to me. Like all the doctors that have worked with me at OHSU, they were very knowledgeable and wonderful to work with. On their recommendation, I am increasing the amount of pain nerve blocker that I have been on, in hopes of eliminating the use of Vicodin at night, which one can get dependent on. Currently I have quite a number of pills that I have to take a day (14). Kath has a system worked out, making sure I do not miss one pill! During my consultation, they tested my balance, among other things, and discovered that I don't have any. Their biggest fear is that I might take a fall, so I have to move slowly and concentrate on lifting my legs when I move. As they pointed out, someone as active as I have been through my life, it is extremely difficult mentally when you can't continue at that level. They have suggested that I continue to do activities where I don't lift my feet. I am able to use the eliptical machine, old stairmaster where you just raise your feet while in the footholds, and stationary bike. I also will schedule Physical Therapy and Physical Medicine and Rehabilitation consultations. They will show me exercises and activities I can do to help with my balance. The thing that I was most pleased with is that this is being set up for long term. They reminded me that this sarcoma is slow moving and that they are developing a longitudinal plan. I like those type of reassurances. Currently I am moving very slowly (which is extremely frustrating for, in my wife's terms, "fast Ron") , but am able to continue to work supervising student teachers through Western Oregon University. I find that when I concentrate on observing student teachers, that I don't have much pain. The problem is at night, when I try to sleep. That is when I notice the pain and it keeps mt awake, so I have to take the Vicodon (usually around 11:00. Four hours later, I wake in pain, so Kath has to get up and give me another dose. I feel bad that she is not getting any sleep, because she is always aware of how I am doing. She is incredible.

I appreciate all that are reading this entry and I do count all your comments, thoughts and blessings as a gift. I love you all and I will keep you posted!

February 2nd

2012-02-02T16:35:00.000-08:00

I have been up to OHSU the last two days. I met with my chemo doctor yesterday and much to my dismay, my blood pressure was 177 over 115. However, the doctor was actually pleased because the high reading showed that my chemo medication is actually working. So they now have me on high blood pressure medicine, which brings my pill count to 14 a day.... Then today, I met with the orthopedic surgeon and after looking at the MRI that I had today, he felt any surgery to help relieve my pain would be too risky. He thought that it would actually do more harm than good. I appreciated his honesty. He has recommended that I go into pain management. Pain management is a meeting with another doctor that will decide what treatment they can do to get my pain under control. Currently my orthopedic surgeon has me on a pain medication that is not working so one idea might be to continue me on this medicine, but at a much higher dosage.

Also, the MRI and CT Scan showed that the bone was not as likely to break as they originally thought so surgery would not need to be done to stabilize it. He told me I could continue exercising using the stair master and the eliptical because those were both low impact exercises. He also recommended that I use the stationary bike for something different. He also mentioned that as summer approaches, I might go outside and try getting on a bike that does not have clips or baskets because he doesn't know if I could get my feet loosened before I fell, if I had to stop quickly.

After hearing this Kath, Brother Brad and I went down to the pain management office to schedule an appointment. And we were told that we would have to wait for insurance...again...before they could schedule me. Unlike the previous experiences, they were much better and I received a phone call twelve hours later with an appointment time available for me. The problem is that they can't get me in until the 17th of this month. OUCH. I guess I will have to try to manage my own pain for the next two weeks. I have scheduled to see my chemo doctor on the 29th (the day our second granddaughter will be born so that Kath can get a Starbucks card-that was her guess on delivery day). He will measure liver function at this time because the Votrient can sometimes cause problems.

I remain in good care, as always, from OHSU. I appreciate all that they are doing. My biggest thanks goes to all of you who are sending positive thoughts my way. I will continue to keep you informed of my progress-as long as my daughter Tiff's typing skills hold out. I am especially grateful for my wife and brother Brad going to all of my appointments the last few days. An extra set of ears is always good.

Love you all and thank you for your support!

January 15th

2012-01-15T18:22:00.000-08:00

After 3 in a half weeks of hassling with insurance companies, one of them agreed to help with costs of medication (about time). I am very relieved to finally have the medication and I am now on day three of taking the medicine. I have to keep a log of any side effects that I have from the medication. I go in in two weeks from now to meet with my doctor at OHSU to see how I am handling the side effects. If I am doing okay, they will wait for less than two months to do the MRI to see if the medication is having an effect on the sarcoma. I am feeling really good except for the lack of balance and being able to walk smoothly. This condition is caused because of the sarcoma pushing on the nerves. Thursday, we go in to meet with an orthopedic surgeon to talk about a procedure they might be able to do to relieve this problem. Sitting and standing is causing me some pain and discomfort which causes me to lay on the couch for quite a bit (those who know my dad know that this is not something he enjoys to do!). I am however, able to do weights and an hour on the stair master/eliptical. So the fact that I can still exercise is a positive. I am still able to do all of my activities, just not for as long as I used to be able to do them.

Again, I have the best nurse in the world, my wife, and she is taking care of me making sure I am doing all that I am supposed to be doing. We know we will get through this, it is just another battle we have to face. With the help of family and friends, we are ready to be successful.

**Our dad has a strength of heart and determination that many only dream to have. He is a remarkable man and has the most compassionate and loving wife there is. Together, these two will make it through this. Their love and support of one another and the prayers and love of their family and friends will guide them through this time. Thank you to everyone for your prayers!

Update December 21st

2011-12-21T20:00:00.000-08:00

Hi everyone. A couple of weeks ago my dad went in for his normal check up. Through the MRI they saw that there was a change, a lightening of the impacted area. They thought that it could be caused by the radiation or that the tumor had begun to grow. My dad went in last Wednesday for a bone biopsy to figure out what the change was caused by. Today we found out that there is still Sarcoma in the bone.

What this means is that the tumor has begun to grow. After meeting with Dr. Ryan, it appears that the tumor probably has been growing, microscopically, since treatment ended. Dr. Ryan said that at times sarcoma's can spread very quickly, but his seems to be taking its time. It most likely has been growing this whole time and just now finally was big enough to push against nerves and cause my dad the discomfort he has been dealing with. Also, it is finally a size large enough to show up on the scan.

One option we were given was to begin a pill regimen where dad will take four pills once a day. This is not meant to "destroy" the sarcoma, but it will hopefully reduce it or at least stop it from growing anymore. This is what we are choosing to do. We are waiting to see if insurance will pay for it. Wow, drugs can be expensive. It is a pill that is used for Kidney Cancer, but Dr. Ryan feels that this is the best option.

My dad will also be consulting with a new doctor, Dr. Ching. This would be for a decompression surgery where they will potentially shave off some of his bone located on his spine (sacrum) so as to relieve the pressure that has been impacting his walking. We are waiting to hear from his office to schedule this appointment.

When he went through his initial treatment, Dr. Hung used such an extreme amount of radiation that he worries anymore could cause nerve damage and end in the same result of the surgery we are not doing-loss of many abilities. Therefore, radiation is not an option that we are looking to.

The only way to get rid of the Sarcoma would be to remove it through surgery. All who know my dad know that this is not an option. So we are praying that the pills and the decompression surgery will be successful in helping my dad regain his amazing abilities and to stop the Sarcoma.

As always, we appreciate everyone's prayers and thoughts. My dad has touched many lives and it is good to know that so many people care about him.

May 23, 2011

2011-05-23T17:44:00.001-07:00

This month marks the three year anniversary since my last radiation treatment. I feel great and there are no side effects. I have several long distance bike trips and runs planned for this summer. Again, I am blessed with wonderful support from my fantastic wife, great family and good friends. What I've learned through the whole process is that if you have great faith and determination and support from wonderful people you can do anything. This has helped to ingrain in my mind to live each day to its fullest and not take anything for granted. It feels great to see the doctors smiling and so surprised every time I go in for my checkups. They have actually released me for 9 months before my next check. Again, I appreciate any comments people do make. It is nice to know that I am still in your thoughts.

This has definitely been an unplanned trip, but one that has really strengthened me and my family in many ways. I actually look forward to being able to share my journey with others. Hopefully I can help in ways that I didn't even realize and give hope to those that are in need. Each day is a gift and I intend on living my life with that in mind.

October 2nd

2010-10-03T14:38:00.000-07:00

It's nice that it has been so long since I have written anything because that means everything has been good. Just got done with my 6 month checkup and the doctors, again, were very excited, everything is great. Dr. Ryan said it had been 2 1/2 years since my last treatment, which is incredible. It was nice that he came in and instantly told us everything was okay so I didn't have to wait for a long winded explanation first. They did take my blood pressure at the start and it was 160 over 98 (extremely high) and after Dr. Ryan had been in and told us everything was great they took it again and it was 116 over 74. Which shows you how stressful these visits are for me...wonder how Kath's blood pressure was.

However, I have to change my workouts. They are concerned about possible stress fractures in my sacrum as a result of my intense radiation. They also recommended I run distances of half marathons and under as opposed to marathons and ultras. We will see...I will run as far as my children want me to run with them, which means I will be running half marathons and under {inserted by Tiff :)}

It does mean I will be doing a lot more bicycling, stairmaster, tredmill and weights. I will have to limit my outside running to soft surfaces as much as possible. As I told my doctors, I can live with that.

Kath has had many health related issues, so it has been quite the change being the caregiver instead of the care receiver. Kath is recovering and has kept her amazing attitude and spirit.

My brother, Brad and I ran in race for the cure and it really enforced how many lives cancer has really touched. It all comes back to being supported by family and friends for those directly impacted.

Had a great summer. Bicycled on four long trips that totaled 1200 miles. Spent two days with the family living in tree houses in Washington. I was able to do a half marathon run with Michael and Tiff, at a much quicker speed then planned. Thanks to Tiff, we were able to experience First Thursday scavenger runs. Throughout this we enjoyed free raffles and good family fun. However, our runs will be much more limited with Michaels admittance into the MBA program at Willamette and Tiff's school year starting again with her reassignment to second grade from fourth grade. She was quite shocked to see the difference in maturity between the two.

Kath and I are expecting our very first grandchild! We couldn't be more excited for Aaron and Jessica who we know will make amazing parents, but also will be willing to share (when the baby is happy and clean)! We are also very proud of Tory who has started her MAT (Masters of Arts in Teaching) program at WOU while also working many hours at Costco. She proves time and time again how strong our Carey kids are.

As always, thank you to everyone out there who has my family and me in their thoughts and prayers. Without you, we would still be here, but we wouldn't be as complete. Love you all!

March 13th

2010-03-13T10:06:00.000-08:00

Lindell told me I had to update this, so here goes...

Even though I know I'm going to have a good check up each time, I am always very apprehensive until the doctors leave. Wednesday, I had my six month check, MRI and CT scan, and all results are, again, very positive. The doctors are still astounded at the results. One of them told me they had not expected this two years ago. It is hard to believe I am almost at the two year mark, which is a huge milestone. Kath, Tory, Tiff and myself were present when the doctors gave us the information. Michael and Amber joined us later to celebrate. Aaron had to work, but we called him as soon as we were done. Tory, Tiff, Michael and I are celebrating by running the 15K shamrock run in Portland tomorrow. Doctors thought I was nuts-my wife said they are right.

The plan is for me to go back in another six months and if all is continuing so well, they will release me for 9 months and then work it up for a year.

Our family is all very thankful. Can't thank the doctors enough for all that they did, but especially my family and friends who have been there for support and encouragement.

Thank you all from my family as well.

To dad-We are blessed to have such an amazing dad and think the world of you! You know this because all four of us kids tell you this frequently, but it never hurts to tell you as often as possible! We are all so proud of you!

October 20th

2009-10-20T18:24:00.000-07:00

For those that are still checking, sorry it has taken so long, but my last appointment was again very exciting. Everything looks great and I have been told that they don't want to see me for six months now. Fresh off of that good news I ran the Portland Marathon with son, Michael and daughter Tiffany. Had a great time and we all finished in good health. Since I haven't gotten any smarter with age, six days later I completed my eleventh Le Grizz 50 miler Ultra-Marathon. The temperature at the race start was zero degrees and the high all day was around 23 degrees. I had icicles hanging from my eyelashes and chin. My wife made sure that I stayed safe and made it through. I am currently working half time at Western Oregon University, supervising students in their teacher education program. Hard to believe Kath and I have been in our new house for sixteen months.

Here's wishing your life is going as good as mine is right now. As always, thank you for the support.

June 7th

2009-06-07T15:22:00.000-07:00

We had an anxious week because my back began to hurt. I was having pain like an electrical shock was occurring in my back, so they moved up my MRI by a month. Dr. Hung came in and the first thing he said, was "just so you know, there is nothing in the MRI to be concerned about". This obviously gave us some relief (A LOT!). The radiation has caused the sheath on my nerve endings to disintegrate, which is causing the pain. It usually occurs about a year out from radiation and in the neck. Like always, I have to be a rarity, so mine is located in my sacrum. It is a temporary condition and it should right itself in the next couple of months.

Afterwards, we all went out and celebrated!

I just wanted to let you all know we are going strong. Thanks again for all of your thoughts and prayers. Enjoy the summer!

February 5th

2009-02-05T18:19:00.000-08:00

I thought I would update my progress for any of you that are still checking this blog and for those of you who are, thank you for your interest and your concern. Yesterday I got the results from my MRI and CT scan that I had this week. My doctors, again were very pleased and excited about the results. Nothing has changed, they thought I looked great and told me to keep doing what I am doing. They reminded us that sarcomas that come back, do within the first two years so my first two years will be my critical time. This April will be my 1 year anniversary from the last time I had radiation. They will keep having me come for MRIs and CT scans every three months until we do hit the two year period. As I told the doctor, I am feeling great and we'll continue my running. They did add one thing to my schedule; I am to start doing Yoga...anything to help me become more flexible. Again, I was fortunate to have most of my family at my checkup yesterday. It was nice to receive the positive news as a group. My wife continues to laugh at the shocked look of Dr. Hungs face when he saw me (He hadn't seen me since June, when I had very little hair and barely any energy). It is nice to surpirse the doctors in a positive way because they see too much of the other.

Again, thanks to all of you who have followed my family and myself through this long journey. I will continue to update this blog after each checkup. Go BEAVS!

2008-10-15T16:38:00.001-07:00

Just wanted you all to know that I finished my tenth Le Grizz 50 mile ultramarathon this past weekend. My oldest son, Michael, and his significant other, Amber, my youngest daughter, Tiffany, and her husband, Andy, as well as my incredible wife, Kath, all made the trip to Hungry Horse, Montana. We stayed in a cabin outside of Whitefish for three days and enjoyed spending the time together playing games and hitting the hot tub. Saturday,we left the cabin at three in the morning to make the three hour trip to the race start. The sky was so clear, but it was cold! Twenty miles to the race start, Kath asked if those were bugs hitting the headlights. To our surprise they were snowflakes. So Michael, Tiffany, and I started the run in the snow. It continued to snow for the first twenty miles, but after that the sky cleared and it was beautiful. However it never did get very warm (perfect running weather). Tiffany had severe knee problems and unfortunately had to stop at twenty-three miles. I was very proud of her to know that she should stop rather than hurt herself badly. Having been there.. .having to pull out of a race after you have trained for months and months is a very hard thing to do. I was also happy that she joined Michael and me at mile 47, so that we could all finish together (she had to skip and hop on one leg). It was great seeing all those individuals that had sent me e-mails and letters during my treatment. It really was very uplifting and gave me added incentive to finish. Michael now has finished two Le Grizz 50 milers and it was special having him by my side to share 50 miles of pain with! At the awards, Pat, the race director, called Michael and Tiffany up front and they got to present my Ten Bears Award to me. It was very special having two of my children present me the award. As most of you know, I would not have reached this goal of ten 50 milers without my wife being by my side, pushing and supporting me all those years. Also my wonderful family, Tory, Michael, Aaron, Tiffany, Brother Brad, Brother Chris, and my Mom have helped constantly encourage me. Thanks again to all of you that also have been supporting and checking up on me. Michael, Tiffany, and I wore shirts that we had made at the end of the run that states it all - NEVER LOSE HOPE!!

2008-09-28T20:31:00.000-07:00

Wednesday was our day in Portland. It started off with a CT scan and was followed by an MRI. We then met with the doctors much later in the afternoon. We were given a GREAT surprise by our daughters, Tory and Tiffany, and our son, Michael, and his girlfriend, Amber, showing up at the appointment with the doctor. Them showing up brought a smile to our faces which even got bigger when we met with the doctors. One doctor called it a miracle, and the other doctor could not believe that the tumor had not grown and that there was nothing in the lungs. They decided that I do not have to be tested again for four months instead of three. I will continue to have these checks every three to four months for two years (since this is the critical time). The girls went out to dinner to celebrate with us. My plan is still to attempt to run my fifty miler in two weeks with Tiffany and Michael. I'm still finding it hard to believe that I was only walking half a block with a cane less than one year ago. I hope all is well with all of you. Thanks for checking on me.

September 14th

2008-09-14T19:34:00.000-07:00

I hadn't planned on making an entry before my test on the 24th, but I have been very excited about the last two weeks. First, two weeks ago I completed the 12th leg of the hood to coast relay. My daughter Tory invited me to be on her team and I wasn't sure how my body would fair. But to my surprise and delight, I was able to run all three legs at the same pace and felt good at the end. The highlight of the run was being able to run the last two miles with Tory, although she had run three in a half legs already, she got out and ran the last two miles to seaside with me. Then yesterday I met my son Michael and his girlfriend Amber, my youngest daughter Tiffany with her husband Andy (and my wife of course) at Timberline lodge at 7:00 am. Then Michael, Tiff and I started the Timberline marathon, 26.2 miles for the uneducated. It consisted of running 23 miles on the Pacific Crest Trail with all of the rocks, roots, and hills...oh, what hills! I tripped and fell six times while Tiff tripped and fell three times. The scenery was gorgeous and it was one of the most beautiful runs I have ever participated in. The highlight of the run was, as well as the hood to coast, that I got to do an activity with my children. I was excited to see Tiff finish her first marathon, but I did ask her why she picked such a difficult one for her first. So today I am walking very gingerly. Now the next four weeks will be concentrating on getting ready for the Le Griz 50 miler in Montana. Hard to believe that eleven months ago I was only walking half a block with the use of a walking stick. I would not be at this point if it wasn't for all of my family and friends who have constantly given me support and encouragement. thanks again and I love you all.

2008-08-18T20:38:00.000-07:00

Sorry it's taken so long to make another entry. Kath and I have been enjoying everyday, and not being computer savy it is quite a chore to figure out how to put in an entry. Things are going GREAT. Kath and I have spent many weeks at Black Butte. I have been running three days in a row and then taking one day off, then running three days. Every Saturday I run long with my oldest son, Michael, and my youngest daughter, Tiffany. As the miles begin to pile up, I begin to think of a goal to shoot for. As a result I am scheduled to run in the Timberline Marathon in four weeks. After that, I am shooting for my BIG one and plan to run my fifty miler the second week in October. Currently I am running between forty and fifty miles a week, so it appears I am on track for my goal. Yesterday, Tiffany and her husband, Andy, Michael and his girlfriend, Amber, and Kath and I completed the fifty-two mile wine and bike trip. We drank a lot of good wine, pedaled up HUGE hills, and had a great time! However, I did go to sleep at 6:30 that night. We're enjoying our new house. Had fun at the Olympic Trials with Harold and Karen. Kath and I attended a Sarcoma conference in Portland last month and learned lots of information. It is a little frustrating finding out that there is little funding available for sarcoma research. We did not realize that there were so many types of sarcoma. We also found out that it tends to hit quite unexpectedly....people are usually very healthy, exercise regularly, eat correctly....generally they have a healthy lifestyle. It hits like a bolt of lightning. They cannot identify any tendencies toward race, ethnicity, age, or sex. Needless to say, it was very interesting to find out all this information. There is a website that might be interesting for you to look up....it is www.team-sarcoma.net. One lesson we've learned through this whole affair is to live each day to the fullest and that is what we are striving to do. Oh, by the way....you wouldn't believe my hair....it is VERY curly and it is very unmanageable (it goes every which way). My mom keeps telling me how lucky I am to have curly hair, but no one would want to go through what I went through to get it. The next entry I make will probably be after the last week of September (after my next MRI/CT scan and appointment with my doctors). Here's hoping everything is going well for all my family and friends.

June 18th

2008-06-18T21:30:00.000-07:00

I write this entry with great relief, the CT scan I had last week showed no growth or signs of the tumor in my chest. The MRI looks exactly like it did in January, which means the tumor did not grow at all, which is what they look for. Both doctor Hung and Dr. Ryan said this was better than they ever expected. They were very pleased that again, I have no pain and that I am back to running. The plan is for me to go back in three months for another MRI. The only thing I have to be aware of is that if I feel any pain I have to give him a call. So I will keep that in mind. This routine will continue for a year. Dr. Hung says time is our friend and our hopes are that it never comes back, so we will keep our fingers crossed. So right now our whole family is celebrating because this is the best scenario we could have expected. Thanks again for every body's thoughts and prayers, they really helped keep me going. Three cheers for modern technology! Kath and I love showing off our new home, so if anybody happens to travel by Salem, give us a call and let us know. You wont find it on mapquest because it is such a new street, so we will give you directions.

June 14th

2008-06-14T16:00:00.000-07:00

We are really enjoying our new home. We have had deer, coyotes and hawks as frequent visitors. It has been nice to hear farm noises outside rather than city noises. We can see St. Helens and Mt. Hood from our front porch. Thanks to Michael and Tiffany, I increased my run to 50 minutes today, I felt like I could go longer, but Kath told me I had to be smart so I let them go on the rest without me. We have furnished our house and it is coming along nicely. We got the couch and chair on Wednesday; it was nice to not sit on the floor or hard dining room chairs. Chubs continues to be a bastard to Michael and Tiff. I have been walking and biking consistently. South Salem has never been known for having flat terrain so I am either running, biking or walking up a lot of hills.

I had my ct scan and MRI on Thursday and we go to the sarcoma clinic Wednesday to hear the results. I will update the blog after the appt to let you know what we know. I hope everyone has a relaxing and enjoyable Father's Day.

June 5th

2008-06-05T20:22:00.000-07:00

Sorry it has been so long, but we shut everything off (internet and TV) while we were planning our move and during our move. As of Sunday we our officially in our new home. I especially want to thank Andy, Tiff, Tory, Chris, Michael, Jeff, Yuie, Bill, Tom, Harold, Ken, Mom, Buzz, BC and Robin for helping move our 22 years accumulated belongings from that house. We have really been enjoying this week, slowly moving things around and planning where pictures and furniture go. We have decided to buy new things and we didn't even bother to move old things, we just gave them away. The only daunting task that needed to be completed in our new house was the lawn. It had not been mowed since the turf was laid. It was as long as a field of oats. I really have to give a big thank you to Ken because he volunteered to come out and he worked from 10:30 to 2:30 working on our yard. He was a lovely shade of green when he was finished. Kath is having fun putting the kitchen together. It is her dream kitchen that only took her 33 years to get. She is going to have to learn to cook with a new gas stove, but I am sure she will master that like she does everything else. Aaron's cat, which we inherited is the only one to seem to have problems with our relocating. She inst sure what to make of the hard wood floors and the high ceilings. I love our location because we are close to the city, yet it seems like the country. Beautiful sunsets and yesterday our neighbors had a deer and coyotes in their yard.

As for me, I am still feeling great. I run in the morning for about forty minutes a day and am riding my bicycle whenever I can. My hair is continuing to grow. I go have my MRI and catscan done on the 12th and we meet with the sarcoma clinic on the following week to find out results. Looking forward to summer weather returning and we should be settled in about a week. We love having visitors and our glad to show off our house. Even the person who installed our internet and cable was impressed with the workmanship on the house. We'll give you an update after my results. (after the 19th) Once again, thanks for your thoughts and prayers. I love you all!

May 10th

2008-05-10T19:19:00.000-07:00

Hello to all. It has been a great week. Highlight was Thursday when the entire family, minus Andy, ten of us, went to Claimjumper in Lake Oswego. We had never been there and the portions were huge, so we were told; everyone leaves there stuffed. My meal consisted of onion rings and a chocolate milkshake for my appetizer. The main course was ribs and chicken, huge baked potato, roasted vegetables, garlic cheese toast, big portion of my mom's ribeye steak, followed by mud pie that I split with my daughters and then I ate another one by myself. After all of this I was still hungry, so I guess my appetite is back. As far as sleep, they found one medication that is working and I am alternating between this and another one that is not working so well. We are right in the midst of packing. Tiffany spent the entire weekend with us and she helped put a huge dent in the house. Our house is in utter chaos to say the least. Our plan is to have everything boxed and ready to go before the June 1st move. I only have two more times in which I have to mow our huge lawn. Looking forward to a smaller place!

I have a George Peppard look to me, as my brother said (Banechek (sp?)). He says I should keep this style, but after being bald I will be danged if anyone will try to cut this. No, I don't plan on acquiring a pony tail.

As you can guess, things are happily chaotic. As always, I am so thankful to my family and all of my friends.

2008-04-30T21:00:00.000-07:00

It's now been a week since I've been done with radiation treatments. It's great not to have to make that daily trip to Portland anymore. The doctor said to go back to my activities and we'll wait until June to see what's happened. Kath and I had been running for a week and a half when the knees revolted. My kids all reminded me (Michael said "Dad, I'm going to tell you what you would tell me..." and Tory reminded me of the importance of stretching....which I have never done)that I need to ease into it so I am waiting for about a week before I start up again. The body wasn't ready for any type of activity after half a year off. Everything is going great except for the sleep. The doctor is still managing sleep medication in an effort to find one that is going to help me sleep through the night. The doctor said the radiation could continue to work for up to six weeks. My lower back feels numb and if I sit too long, I can feel the tightness, but that is the only ill effects of my treatment. It is still difficult for me to carry on a conversation on the phone for any length of time. Hopefully, that will improve. I am working to concentrate on the positive and it is difficult to do sometimes. One of the things that was difficult in Portland was listening to people talk about their illness and ask me how I was doing. Although I appreciated them asking, I am not the kind of person that needs to be reminded that something is wrong. Our doctors told us that we need to talk openly about the situation so that we can deal with it. It definitely does not work for me. We told them that it did not work and that we would not deny it, but we were not going to dwell on it. And so we choose not to talk about it. Kath and I have always been positive and we will continue to look forward. I guess I don't understand those patients who want to talk about it, all it does is just bring me down.
On another note, Kath and I have sold the house and made an offer on one four miles from where we live now. It is in a new development and the house will be completed in another two to three weeks. We both figure it is about time that we treat ourselves to a newly built house that has not been lived in before. It will be nice having a small yard and 1960 square feet instead of 3700 square feet. The closing date is set for May 29th if all goes well. Kath is packing now. I'm glad I went through our storage room last year and got rid of lots of stuff we did not use. It's nice to be going back to some of the old routines such as our constant trips to Costco, Great Harvest, having lunch with Carl, and doing numerous activities with our kids. Kath and I are planning to head to Black Butte next week, and I am in the process of planning a June bike trip with Carl. It's nice to look forward to things, and it's always nice to know we have so many caring friends out there. I love you all (in a manly way, of course).

April 20th

2008-04-20T11:26:00.000-07:00

Three more trips to Portland!! To celebrate we are going to stay in Portland Tuesday night and have dinner with Tiff and Andy. The biggest change this week was the doctor's appointment on Monday. He gave me the okay to start running. My wife's reply was, "oh no, now I have to start back." So Monday we ran for six minutes, Tuesday for fifteen minutes, Wednesday twenty minutes, Thursday twenty-five minutes, Friday thirty-one minutes, and Saturday we ran for thirty-three minutes with Tory. It feels good to actually sweat again, by choice. It isn't helping me sleep at all though. I will be glad when Friday is over because it is the last day I have to put the ointment on my back and lay on the couch for hours. The doctor still can't believe that I have not been burnt from the radiation,. In fact, he made me lift up my shirt so he could see for himself. I know I am not burning because of my wife's expertise on rubbing lotion on my back and the fact that I am staying still. We had lunch with Michael and Amber on Tuesday to celebrate his birthday. Aaron came over Thursday to watch TV and have pizza. Barry stopped by Friday, which we appreciated, but it is not a habit of mine to visit with people while I am laying naked on the couch with the ointment on, so Kath and he talked outside. Yesterday we spent the morning with Tory and we ran into Corky, Cathy and Kristin at Great Harvest. Then later in the day we met Reed and Kelly at Costco...there's a shocker. It is nice running into people when we are already out and about because once I am home I am unable to entertain visitors while I am laid up on the couch with the ointment on. Bailey (our grandpup), Tiff and Andy came down for homemade pizza today. I am still unable to get much sleep. The acupuncture doctor said on Thursday we should discontinue doing it because it was not helping. Both the doctor and I were disappointed that it didn't work.

Thanks for all of the comments, it is a joy to see them all.

April 12

2008-04-12T17:04:00.000-07:00

Kath and I have eight trips to Portland left. Again, emphasize, I HATE the commute. I am so tired of driving in that traffic. I have been very fortunate of going through this for five weeks and still no radiation burns. The appetite is still good, actually putting on pounds. Not being able to run is making it harder to keep the weight down. The only negative that I really have is that I can feel a tightness in my lower back which bothers me. It is not really a pain, it is just something I am aware of. They have changed my medication for the antidepressant dosage medication. Been able to sleep lately, with medication, for three to four hours at a time. Look forward to the day that I can go to sleep without any help from medication.

While we wait for my appointment each day, we sit in the waiting room and it is depressing to me. Other patients try and talk to me about what they are going through and ask me questions about what I am going through. All it does is just bring me down. I enjoy thinking of other things, I don't want to talk about it. I just want to think positive.

The weekends have been the most fun because I get to see my kids. Last couple of weeks Tiff has come down on Friday nights and spent the night and all day Saturday with us. Everyone is excited about that except for our cat who has a problem with Bailey, Tiff's dog. Our cat seems to have Bailey buffaloed. It was a real treat when Tory and Chris brought their two big dogs down and they didn't back down and chased the cat all over the house. It had been a long time since I have laughed that loud.

I appreciated Barry stopping by and Reid driving down from Tualatin to meet us at Costco and Bill stopping by on his bikeride. I take visits in very short bursts, I don't last real long. I never know day to day how I feel about visitors, but these guys hit the right time. In the middle of all of this we got an offer on the house and we are waiting for the inspection on Wed. If it sells, fine, if it doesn't, that is fine. We have a hard time leaving this location because it is a nice location. However, 3600sq feet, five beds and a huge backyard is a little much. My poor wife mowed the front and back lawns this week because I didn't have the energy. MY hair is growing back slowly, but not fast enough for me. My progress still amazes the doctors, but we know that I am an amazing man. (per my wife) I have four more acupuncture sessions left. I do not recommend it, all it does is hurt and I am seeing no change, but it was worth a try.

We saw a glimmer of my old routine today, as Kath, Tiff and I spent three hours at Costco, visiting with friends and low and behold, we ran into our other daughter, Tory. Also we got lots and lot of samples and some supplies.

Thank you all for your comments and thoughts.

April 5th

2008-04-05T13:15:00.000-07:00

We only have thirteen more trips we have to make up to Portland. Kath and I are getting really tired of the commute, we don't know how anyone does it. I've been fortunate in the fact that I have not lost any weight, which is a typical side effect and I have not had any radiation burns either which is also a major and typical side effect. I lay on the couch and Kath puts lotion on my back that does not absorb at all. It is to keep the moisture in so I have to lie on the couch for hours and hours to make sure it does the job, and so far it has. I think why other people get burns is that they put clothes on immediately after and it wipes off, so I have been good to keep things off of it. I have not lost my appetite, which is another typical side effect. The only thing that is very typical is the depression and fatigue, but I fight through that to get a walk in every day. The major obstacle is that I can not sleep at night, I go days without sleeping, Medications work occasionally. I will be seeing a psychiatrist this week. They can prescribe other medications that are more symptom specific than the other doctors could give me. I had a real good day Wednesday, Kath, Tiff and I rode the tram down OHSU, caught the street car, rode into Portland into the Pearl district and walked to 23rd and then rode back for a total of walking 50 minutes. Then I had BK...haven't had the stomach for that in a long time. Haven't been there for months. Also, I can't see it, but my family sees my peach fuzz on my head. I can't wait for it to grow back so my internal thermometer can get back on track.

We arrive at OHSU about 8:55 and they have gotten me in the minute I arrive most days, but one. So to beat the fatigue, Kath and I walk right after the appt. at Lake Oswego. I am pretty exhausted by the afternoon so I haven't been taking my usual walks with friends. I look forward to not being on this schedule so I can resume the walks once more. It is bizarre, but my taste and appetite are back for everything but the donuts.

I have never appreciated my wife and kids more than I have over the last couple of months. They really have helped me through this.

Finally, Tiff wanted to wish Sport Happy birthday!

2008-04-01T15:40:00.000-07:00

Well, Ron has just hit the half-way mark with regards to the radiation treatment. It is nice to realize that we just have to make that "delightful" drive to Portland sixteen more times. He gets his treatments at 9:30 each morning now, so we get to see some of the commute that many people make each day. We have a whole new respect for those folks. Dr. Hung continues to feel positive about the progress of the radiation. Ron's skin still is clear of all burns (which is a real plus), but he is experiencing the fatigue associated with his treatments. He is now off ALL pain medications, which is definitely positive progress considering that two months ago he was on a Fentanyl patch of 150 mcg. He did go through some powerful withdrawl symptoms when he discontinued the patch. We are now past that "bump" in the road. As suggested by the doctor Ron continues to walk everyday.....even when he is exhausted. I (Kathy) have become his walking partner, so he is working to get me in shape. I can hardly keep up with him. It is so nice to hold hands and talk during our walks. He is still receiving acupuncture without any good results. He is going to continue for a little longer in hopes that it can help with the insomnia. It is amazing what a little sleep will do for the attitude. He went for three days with NO sleep and was able to sleep last night for a little over six hours. Hopefully this will continue. We have been able to spend lots of time with the kids, which is one of the brightest part of the week. Our kids are WONDERFUL!!!! Thanks for all your thoughts and prayers!

2008-03-22T16:47:00.000-07:00

We would like to thank everyone that helped us celebrate the ending of the chemotherapy. What a treat it was to see so many people who have been so supportive. Well, Ron just finished his tenth day of radiation treatment. He is scheduled for twenty-three more treatments, so we are almost one-third of the way through. He is still not sleeping at night and has even resorted to acupuncture to help with the insomnia(can you believe he has agreed to have needles poked into him?). He is still not seeing any results, which is frustrating. We meet with the doctors each Monday after his radiation treatment which is nice because we have the opportunity to ask any questions we might have. Already, Ron seems to be experiencing fatigue caused by the radiation, and as he expressed to the doctor, he feels like he is on an emotional roller coaster. We are hoping that if he begins to sleep better, some of these feelings will be resolved. Thanks again for all your thoughts and prayers. By the way, the acupuncture doctor kept telling me that "He is VERY strong man" and I kept telling him "I know"......but then we all know that! Thanks again.

LET'S CELEBRATE!

2008-02-22T19:53:00.000-08:00

We would like to thank everyone for all the support and prayers for Ron's healing. We are having an "Open House" on Sunday, March 9 from 2:00 to 4:00 to celebrate the success of the chemotherapy. We appreciate ALL the help and support you have given to Ron and the whole family! If you can make the open house, we would love to see you. We (of course) will have "food".

February 20

2008-02-20T20:16:00.000-08:00

We (Aaron, Tiffany, Michael, Tory, Amber, Andy, Kath, and I) just got finished meeting with the doctors in Portland and going over my test results. We are very excited!!! The last bout of chemo not only stopped the tumor, but actually shrank it. The doctors and nurses were very pleased with how I looked and with how good my labs were. The next step will be to start radiation in about two weeks. I am being taken off all medications, and start reducing my fentanyl patch. I will have my picc line taken out next Wednesday. I look forward to that because I will then be able to take a shower for the first time in months! I was told that I should continue my walks and that I could also ride a bike. Not allowed to run, but will manage with the other exercise that I get. All in all, I am thrilled! Thanks again for all your thoughts and comments. Since nothing will be changing until I start my radiation, I will not be putting anything new on this blog. Love you all, and keep those positive thoughts going. Hope to get to walk with some of you in the future. Feel free to write on this blog if you want to get anything to me. I will keep checking it every other day or so. Thanks again.

February 18

2008-02-18T08:34:00.000-08:00

This is the kind of weather that we have been waiting for! Had a very busy weekend with many miles put in. Friday I walked about 7 and a half miles (with Carl, Barry, and my wife) Also my daughter Tiffany spent the night with us on Friday. Saturday Michael came down from Beaverton and I walked four different times with distances of 2 and a half miles, 3 miles, 2 miles, and finally one mile. Thanks to my wife and my children, I was able to keep going all day. Then Sunday, we drove to Albany and met Penny and Judy (friends from childhood), and walked around the downtown area of Albany for an hour. Had lunch with my mom, Michael, Judy, Penny, and my wife at the Depot. Nice to see that I had an appetite (three prawns, two pieces of fish, large shrimp salad, and fries!) Got home and Kath and I walked another mile. Today I am going to mow a little of the back lawn and of course, walk again. Planning on having dinner with friend Bill Rupp tonight and watching Rambo. I feel like watching a no think movie and kicking back. The only negative seems to be the sleeping habit. I just am not tired and can't seem to sleep at night. My mind just will not rest. Tomorrow are my tests in Portland (MRI and Catscan). Wednesday we meet with the doctors to go over the tests and plot where to go from here. Part of the no sleep could be from worrying about the upcoming tests. I just want to make sure that Kath gets plenty of sleep. I worry about her not keeping healthy. Thanks again for all the comments on the blog. Nice to have wonderful friends!!

February 15

2008-02-15T16:13:00.000-08:00

Last two days have been beautiful, weather wise. Have been able to log several miles. Put in 6.5 miles walking Friday thanks to my wife, Barry and Carl. Today, I put in 2.5 miles in the morning with my wife and 4.5 miles in the afternoon with my daughter Tiffany (and of course her dog Bailey). Taste buds appear to be coming back. Feeling pretty strong on the walks, no longer feeling that exhausted. Will be watching to see when the hair decides it wants to come back. Finally, yesterday at Costco my wife and I were sampling, as we do very well at Costco when we came across a seafood gumbo dish that was very spicy and I could really taste. So we bought some for the evening meal which I finished, went back to Costco to get more and they no longer have them. I, out of anyone should know, that if you find something you like at Costco you should buy lots of it because you know it wont be there the next time you go. Just to show how my tastebuds are going, had three tacos for lunch with 5 packets of hot sauce per taco. I am trying to jump start these tastebuds. Have set several future walks starting Sunday through next week with various individuals. Everything is up in the air until tests on Tuesday and Wednesday, then we will know where we are. But I am feeling good and looking good, Tiff thinks so anyway :). Love hearing the responses on the blog. Thanks to everybody! enjoyed seeing my youngest son this week and my eldest daughter and I look forward to seeing my eldest son tomorrow. It is fun having Tiff and our grandpuppy spend the night with us tonight. It was also great to see everyone else I had the pleasure of visiting with this week. Thanks again!

February 12 - Feeling better

2008-02-12T21:28:00.000-08:00

Was released from OHSU at around 11 o'clock am on Monday with a mess of medication (thank heavens that I have an incredible wife that can keep track of the names, when to give them, and pronounce their names). These first six nights are the roughest since I have to be medicated at midnight and 4AM. Once over that hump, it is down to just two pills at 10AM and 10PM. Tuesday after we were home, Kath walked me just the length of the block and back two times during the day and I had to use my walking staff (present from my bro BC) to help balance. I was very groggy and had a hard time at it, but it was a start. Then today, Kath and I walked 2 and a quarter miles at 10AM without the walking staff! Then later in the day around 2PM, Barry and I walked for another 2 and a quarter miles! The only problem seems to be these blasted hiccups. Can't seem to get them to stop, even with pills. They really zap me. It gets tough to try and talk when every other word you have to interrupt with a hiccup! The plan is now that I will have my CAT Scan and MRI on Tuesday of next week to see what the chemo did. Then meet with the doctors on Wednesday about planning the radiation treatment. I am feeling good except for the hiccups. Thanks for all your positive thoughts over the past week.

Home

2008-02-11T21:13:00.000-08:00

Well, dad and mom are now in the comfort of their home. YAY!! Dad was released late this afternoon. Dad is very very groggy. The medications are doing their job at keeping the nausea at bay & the hiccups under control (for the most part), but they make him drowsy. Needless to say, they will be napping for the next few days. The drs said it would be about 6 days until dad feels a little more normal. Mom & dad are both looking forward to sleeping in longer stints than the 1 to 2 hours they have grown accustomed to (w/the extra hydration & the checking of dad's vitals so frequently, it was very difficult to get any good REM sleep in the hospital).

Dad will let you know through the website when he's up to walkers/visitors/phone calls. Thank you for all your understanding with that! Much love to you all!

Just kidding

2008-02-10T21:09:00.000-08:00

I should know better than to jinx something as wonderful as dad checking out of OHSU for his last chemo treatment....

Shortly after the last entry was posted I was informed that dad would not be coming home today & it would hopefully be tomorrow, instead. This information was given & received with mixed emotions. Dad started to feel a little nauseous today. Dad & mom decided it would be best for dad to stay under the care of the nurses & drs until they found the correct mix of medications to quell it. As much as they both want to be home, they felt this was the right decision (good call!). So...if all goes well for the remainder of tonight & tomorrow morning, dad & mom will be in the comfort of their own home with Little Kitty by their sides tomorrow afternoon.

Home sweet home...hopefully

2008-02-10T10:00:00.000-08:00

Hello & good morning to all! I apologize for the days in between...it's because life has been good & not horrible (when things are on the positive slope, it's easy to get caught up in it & forget to update the blog - I truly am sorry to all of you).

Dad is still doing great. He's been going on walks around the floor in the hospital, he's been sitting up for different stretches of time, he's eating, he's able to watch tv, & is able to talk. He does keep getting those darn hiccups, but the nurses are quick to give him the drug that is supposed to help them subside. As of last night late....dad is still on target to get home late this afternoon. They are going to treat the nausea very aggressively this time. Hopefully they find the right mix of medications this time & dad doesn't have to worry about it at all.

& HOPEFULLY, the next post you get is from dad in the very near future. :)

Daddy & mommy....you're almost there....just a few more hours....NO MORE CHEMO!!!!! A big congratulations to making through it & for still having your sanity.

Congratulations to everyone that is continually checking in through this blog....we made it through as well. I know how hard it is to sit on the sidelines. To not be able to converse with dad, for those of us that see him frequently, it's hard to sit at home. Dad & mom are constantly in our thoughts & there is literally nothing we can do. Many times we feel helpless. But, despite what you may think....you have contributed to the success of dad's chemo. He & mom would not have made it through this extremely trying time without this incredibly strong & positive support group. This I am 100% certain about. Your emails, letters, posts, love, prayers, thoughts, walks, all the little things each individual has done are truly amazing. Dad, mom, & our family are blessed. Our lives are much richer thanks to all of you. The support you have given mom, dad, & us kids is astounding. So, thank you, & know that we mean it from the bottom of our hearts.

All of our love to you & your families - The Careys

February 7

2008-02-07T22:10:00.001-08:00

Good evening to all!

Dad's doing much better today (a nice change from the past 2 chemo treatments). He looks great (well, for a guy that's hooked up to medication that nurses can't touch because it's so hazardous)! They had that vegetable quiche for lunch again today. Needless to say, mom went to the cafeteria & bought him a burger & a Haagen Dazs bar - much better option. Tonight dad ordered a peanut butter & jelly sandwich, some apple pie, & broccoli for dinner. It was either that or the salisbury steak. Good choice dad! He has no nausea right now, but the shakes are hitting him intermittently. Hopefully they stay away for another 48 hours. He & mom are watching a lot of senseless tv in the hospital (yep, just like at home). Michael & Amber rented them Wedding Crashers (fantastic choice) & The Comebacks. Hopefully they help pass the time in an enjoyable way.

February 6

2008-02-06T20:07:00.000-08:00

I'm not sure if my parents (or siblings) will post anything tonight, but I'm sure many will be wondering...yes...dad did finally get a room. He will be hydrated for 4 hours & then they will start the chemo drip (there will be no delay with that, tonight, because the medication is already up on the oncology floor - YEAH, something went smoothly!) at about 11:30pm.

Mom & dad went to Great Harvest this morning for lemon poppyseed scones & they waited around to hear from the hospital. They finally headed up to Portland at about 3:30pm. I can tell you that dad was thrilled because he was able to drive. Yep, the dr gave him the green light yesterday.

It's hospital time...yep...please no phone calls until it's all done...it's the last time we have to say this...WA-FREAKING-HOO!!!

More will be posted tomorrow night late (if dad doesn't end up writing a post tonight). Time for many happy thoughts again...I'm raising my glass of cab for you & mom, dad! The next glass will be raised for all of you that continue to follow this blog, to call & write, think of our family, pray for our family, & love our family! Here's to the last round!!!

February 5

2008-02-05T15:03:00.000-08:00

Delay again. Kath and I drove to Portland at 8:30 this morning for my blood tests. The results came back and the nurse said everything looks great on paper, which is good. We got ready to check in to the hospital after that and found out that there were no available rooms. So we headed home and have to call tomorrow to see when we can get a room. On the bright side, I get to eat another meal at home and was able to have lunch at Costco. Also another night sleeping at home will be nice. Think I will hit Great Harvest for a lemon poppyseed scone for breakfast before we leave. The down side is that now the earliest I will be home is probably Monday. Again I hope it goes smoothly. Hope you all have a good end of this week and a relaxing weekend.

February 3

2008-02-03T21:37:00.000-08:00

Just watched my daughter Tory run the Zena Road Run Race this morning. My wife, Kath, and my son-in-law, Chris, walked a bit while the runs were taking place. My daughter won her division as did her co-worker, Mike. Her other friend, Tanya, placed third. Fun watching, but really made me anxious to get back on the roads. I'll be back there in a few months. The weather was perfect for running. Fun seeing familiar faces at the run. Brought back great memories. I was able to do several walks with Kath today, thanks to the great weather. Been having a great time with our new DVR on the television. Wonderful not having to sit through commercials any more. Watched the last few minutes of the Super Bowl. Much better than everyone thought it would be. Glad the Giants won. I was tired of hearing about the Patriots and how great they were. This will be my last entry for awhile. I go in to the hospital for my last chemo this Tuesday. It will be nice to have that done. I hope this goes smoother than the other three have. I will communicate on my blog as soon as I start feeling better from this last chemo. I hope the hiccups and upset stomach stay away this time. I look forward to getting back home and seeing if this DVR has worked. I have it set to record all MASH, Home Improvement, King of Queens, and Everybody Loves Raymond. As you can see I am in to all no-brainer comedies!! I will check my blog during this time when I feel up to it, but I just won't be replying until my brain is functioning up to speed. Love you all.

January 31

2008-01-31T20:54:00.000-08:00

I truly am tired of this weather. Was able to get out for a couple of walks thanks to Mike Strickling (drove up from Albany), Barry, and Carl. The hiccups are finally gone, but the appetite still is not what it should be. Enough of that. Glad to hear from Buck, Jim Ruthruff, Doug, Jeff, Harold, Michael, Reed, and Kelly. Much fun with Mongo from Blazing Saddles. Glad that a lot of us have that sense of humor and were able to follow the silliness that we were having. Answering a few questions, I don't think that we have hired a coach yet for the vacant Beaver job. Don't think that the McMinnville connection has decided to take it, Buck. The endless supply of money from Uncle Phil always amazes me. Can't wait to see the size of the Duck's baseball complex. We Beavers, however, know that it is not the size, but what you do with it. Right, Reed!? Only problem today was when Carl came over and we waited to watch the Arizona/USC basketball game and they decided to air Sports, Bloopers instead. Here's to sun!!!

January 28

2008-01-28T19:42:00.000-08:00

It was great to have some sunshine today. Able to go on three walks, thanks to my wife, Barry, and Carl. It was amazing that such a little amount of snow upsets so many people in so many ways. It was nice since very few people were out, so I was able to just go for casual walks in the street. Enjoyed hearing from so many of my friends. Glad to see that Jim and Sandy made a trip to my favorite place (Costco). I laughed out loud about your little stowaway (mouse) you discovered. My mind drifted to another of my favorite places (Palm Springs) after reading Glen's entry. Thanks Reed, for reminding me that OSU has a baseball team and that U of O will try to compete on that level this year. Should be interesting. Thanks also to Dar for reminding me of my years of coaching girls' basketball. Those were some of the most rewarding years I had and know that your daughter will continue to bring you those wonderful memories. Sorry that Jefferson is laid up, but like Mongo, you are pawn in game of life. Thomas, the almond toffee crunch arrived again, which satisfies my candy desire and I appreciate that. Thanks for all of these. This is what I enjoy hearing about and look forward to hearing more of. As for me, my weight continues to fluctuate, but it is okay currently. Food still does not look that appealing, but I am able to get enough down. Here's to more days of sunshine and waiting for the moment that food will begin to have an interest for me. I especially can't wait until pastries start to have an attraction for me! I miss my doughnuts! Have a great week!!

Saturday, January 26

2008-01-26T21:06:00.000-08:00

Hello all! Each period of time after each chemo has found me in a different state each time. Currently I have been watching the Duck and Beaver games respectfully. Thought the Ducks were going to get it in OT. Way to go in the first half, Beavs!! It has been enjoyable so far. Looks like the attendance is a bit better there tonight at least. As for my health, I am still fighting the hiccups and trying to keep the weight on. Less and less is sounding good to me. I am forcing food down, but sure wish things tasted better. If I could get these hiccups to go away, I would be feeling much better. Today Tory, Tiff, Michael, and Amber spent most of the day with Kath and me. Unfortunately again the Oregon weather did not smile on us, which cut off my outdoor walks. My wife did make homemade pizza for us. Afterwards we played several games of Password, Outburst, and Guestures. Love being able to laugh. How would you respond to a clue of "straw------"? That was for you, Michael! About a half hour after the fam left, my brother, BC, showed up with his friend Robin and watched all the Oregon game with us. Great time of telling stories and visiting. After BC and Robin had left, I decided to send this message off. I really appreciate hearing what you and your families are doing and what is going on in your lives. This helps give me a better focus. I enjoy hearing about the Beavers and Ducks. I enjoy little stories about what is going on in your lives. Thanks again for reading the blog and getting the information.

Home

2008-01-25T22:42:00.000-08:00

Dad is home & hiccups are a little more under control...thank goodness!

The drs released dad from the hospital at about 5:00 pm this evening. Mom said they had dropped the prescription off at the pharmacy, were headed to Costco (Harold...you've NEVER been to a Costco?!?!?!?!) to get dad a salad, back to the pharmacy to pick up the much needed meds, & then off to home sweet home! Mom said dad is feeling so much better (as if he could have felt any worse) & is ready to be home & to relax w/o those dang hiccups. We'll give you more of an update tomorrow...hoping we are able to visit & play a few games of Password w/mom & dad tomorrow afternoon.

Not fair

2008-01-25T07:52:00.000-08:00

Life just seems to not be fair sometimes, I'm sure many will agree whole heartedly.

Dad & mom headed to the emergency room in Salem last night. Dad's hiccups became a little more frequent. As in, every hour on the hour for at least 15 minutes. As the day wore on, they became deeper, & brought on many unexpected & unwanted things (i.e. acid taste in his mouth). Mom called Dr. Ryan's nurse (chemo dr at OHSU). She finally told them to go to the ER in hopes of them getting some meds in dad through an IV. They ended up checking dad into the hospital late last night & are going to get him some fluids & keep him on the anti-hiccup drug for a few hours.

We'll keep you all updated as we hear more information. Please, especially now, no phone calls or visits. Thank you!

Hiccups suck.

2008-01-23T21:02:00.000-08:00

As you can all see, dad's still not up to par. Tried for a walk today, but got the hiccups so bad he had to come home. Went in for his blood work today (his counts are pretty low so he's VERY susceptible to every germ - but that's to be expected at this point in his chemo treatments). He's still nauseous all the time.

The dr. prescribed some new medications in hopes that this new combination will be the right one for dad. Dad had a little talerina for lunch/snack today. He's been drinking & eating as much as he can - talk about amazing will power! We had steak, potatoes, salad, fruit, bread, & a little ice cream bar for dessert - dad did eat with us (great job, daddy, I know it wasn't easy!) & had the hiccups a "few" times. Please, please, please, everyone cross your fingers that this is the right combination of medications!

Thanks to everyone that has been resorting to this blog & email for communication with mom & dad! I know it's not easy to have to rely on modern technology & it takes longer to get a response, but it is very much appreciated! Mom & dad have been trying to nap (sleep has not been coming easy at night) during the day & with the phone ringing, it becomes a little difficult to get those much needed zzzzz's. Dad will let you all know, via the blog when he's back up & ready for phone calls & visits.

January 23

2008-01-23T14:58:00.000-08:00

I am home, but really feeling the effects. Got sick last night, have a case of the dad, deep hiccups and no appetite. It usually takes three to four days to get feeling back to my old self. Thanks to Tom for the candy again and Georgia for the stitching picture hangings (pictures of my classier moments). I'll let you all know when I get back to myself. Sorry this is so short, but hands are not functioning well either.

2008-01-22T21:11:00.000-08:00

Sorry....still no dad.

Today was another rough one. The days are full of nausea. Dad & mom went to Shapes (no, it's not Curves where women workout in circuit training - it's the lab that cleans out dad's pick line & also does his blood work once a week) & then spent the remainder of the day at home relaxing. They tried to go to Home Depot, but dad didn't feel so hot so they headed home. They got more anti-nausea meds prescribed since this is not subsiding. Hopefully, they will put dad to sleep tonight & help his stomach calm down. He tried to eat a bit, but nothing was even decent to his taste buds nor was it kind to his stomach.

This is not surprising....the nurses & drs told mom & dad that his body hasn't had time to recuperate from all the destruction from the past chemo sessions, so his body's natural reaction is to reject the food.

On a brighter note...they scheduled his LAST chemo session! YEAH DADDY!!! It's almost over! It is scheduled for February 5th. Yes, he'll be done with the most difficult horrible part in 4 weeks time! Radiation is supposed to be a little more gentle (not sure the English is correct on this, but I'm sure my sweet younger brother could give me a English lesson :) - I'm MUCH better at math) on dad's body (because of where they tumor is located it shouldn't disrupt his insides).

Dad'll let all know when the chaos in his stomach is over....it'll make his days so much more enjoyable! Lots of love to you daddy, mommy, & all in "blog land!"

Home sweet home

2008-01-21T20:45:00.000-08:00

Hello all!

Daddy is home!!! He was released this morning at about 7:30 am. He & mom had an uneventful drive home...no traffic thanks to MLK day. His nurse from yesterday came in early today so that they could get dad home. How amazing & wonderful is that?!?

Food...don't speak of it at this point...pretty sure it truly is a 4 letter word for dad at this time. So sorry daddy! I've been eating enough for the both of us. :) Dad & mom hit up Costco today (I know, total shocker) to walk around & to have a piece of pizza. Dad also swept up the basketball court in this tundra-like weather. The remainder of the day was spent resting/napping/watching tv.

Thanks for all the posts...dad will be enjoying them tomorrow (since he won't be on so many drugs)! Hopefully, we'll all get to hear from him first hand, shortly.

2008-01-19T19:04:00.000-08:00

Hello all. Nothing new to report. Today was exactly the same as yesterday. Hopefully we'll know tomorrow when dad's going to be able to come home. We'll keep you updated if there is anything new. Thanks again for all the emails & posts!

Day 2

2008-01-18T16:53:00.000-08:00

Today has brought about the typical symptoms that dad has been experiencing through these chemo treatments...they just came 24 hours earlier than usual.

Dad has had the hiccups all day. He's also been nauseous since last night. They are giving him anti-nausea & anti-hiccup meds, but they are only helping to alleviate a portion of the pain/annoyance/sickness. The benefit to the meds are that they do wipe dad out & he drifts in & he's been drifting in & out of sleep all day. He also has the shakes so they upped the methalyne blue (the drugs that dilute the most potent part of the chemo) in hopes of stopping them. He's attempted to eat a little food today, but it hasn't been easy.

Only a few more days of this *$@% , daddy! Hang in there! You are in all of our thoughts & when we can't be at the hospital with you, we're with you in spirit. Sleep as much as you can & save up your energy for those walks! Mom, we hope that solitaire percentage is going up!

Day 1

2008-01-17T21:50:00.000-08:00

Today brought about a little frustration...the chemo did not start until 2:30 pm. There was some kind of mix-up in the pharmacy that put the treatment off. They finally did get it going & dad will be receiving the chemo until Sunday at 2:30 pm. They will then flush his system w/another drug for another 24 hours.

On the positive side, dad did get a little sleep last night. The nurses brought mom a cot so she was able to catch a little zzzzs as well. Unfortunately, dad can't sleep through the entire night because they are pumping him full of fluids so he has to get up to use the restroom frequently.

The lunch today was some kind of vegetarian quiche (I hope those of you that know my dad well are getting as good of a chuckle as I did out of that). Needless to say, mom went downstairs & bought dad an American dip & a double chocolate Haggen Daz bar (sp?). He said the ice cream was good, but the rest is blah again. For dinner he had a burger, broccoli, ice cream, some Dove chocolate candies & some dark chocolate toffee. Tom Cutsforth....what a WONDERFUL surprise to find chocolates on mom & dad's front porch this afternoon! As soon as I walked into the hospital room & showed them the box, dad asked if he could have some of Tom's candy (& don't we all wish we could have a diet full of steaks & candy).

Dad was able to enjoy a few games of Password with mom, Tiff, & Michael this evening. After dinner he started to get a little nauseous so they gave him some meds to help alleviate the discomfort. He's hoping for another night of restfulness.

Thanks for everyone checking in! Dad & mom both appreciate it. It gives them a little break in the day (watching tv all day can get a little old). We'll let you know how it goes tomorrow...hopefully the days will stay fairly uneventful this time w/the decrease in the Iphosphomide (nurse Dave is very optimistic about it)! Love to you all!

Results...kind of...chemo time

2008-01-16T18:03:00.000-08:00

Here we sit waiting to check into the hospital for chemo round #3....

Dad had his MRI this morning at 9:30am, had his blood work drawn up & his appointment with all the drs wasn't until 2:30pm. Mom, Dad, Tiffany, Tory, Michael, Amber, & Uncle B all dined at the Old Spaghetti Warehouse for lunch. It's the first time dad's stomach actually growled & he wanted food (he's been having to force himself to eat). He had a large plate of spaghetti w/marinara sauce, salad, lots of bread & shared a piece of double chocolate fudge cake & ice cream w/his daughters.

From there we headed on to the appointment (lots of time to spare). We sat in the waiting room & played many games of Outburst Remix. Great way to pass the time! Aaron & Andy came to join us at this point, as well....Yep, the drs got the entire family!

The MRI results came back...they showed no change in the size of the tumor - this is very good. The tumor has destroyed dad's bone & the bone will never grow back (we already were aware of this) so the MRI shows abnormalities. The problem with this is that the test results can't tell us if the chemo is working or not. The drs all agreed that, with dad & where the tumor is, they would have to determine if the chemo was having positive effects by dad's feelings & activities. Because dad's pain has decreased so much & he is able to walk so many miles a day, they felt quite optimistic about the treatment so far.

We met w/Dr. Hayden first (the orthopaedic surgeon that performed the open bone biopsy). He gave us more information about the surgery that could be used to remove the tumor. With all the information & his recommendation not to...we decided that this is not an avenue we are willing to explore at this point in time. He was very impressed with how dad looked & his activity level.

We next met with Dr. Hung (the radiation dr). He was quite impressed with dad as well. He said that he was going to push for a few more rounds of chemo. He reiterated that we needed to go by how dad was feeling & that it seemed as if the chemo was having a positive effect on that darn tumor. He then went over the radiation treatment dad would undergo (when the time comes). Dad will do about 7 weeks of radiation. It lasts for about 15 minutes & is every day. He will begin this treatment about 4 to 6 weeks after his last round of chemo.

Then Dr. Ryan came in (chemo dr). Dr. Ryan said that he & Dr. Hung reached a consensus that they would perform 2 more rounds of chemo. Usually, 4 rounds of chemo is what the number is for angio sarcoma patients. This way the patients get plenty of chemo, but also are able to start with the radiation therapy quicker. He said that he was going to reduce the amount of Iphosphomide (you happy, Michael? :) I know I didn't spell it right, but at least I attempted this time - you know I love you & your teasing) by 20% & is also going to give dad the Metholyne Blue the entire time (this flushes out the Iphosphomide & makes it a little less potent) in hopes of curbing some of those horrible side effects (the shakes & confusion).

Dad is now checked into OHSU for the night. They are going to pump him with fluids (also hoping this helps with the side effects) tonight & start the chemo tomorrow late morning, early afternoon. He will be there for the 3 24 hour IVs & we are hoping for a release on Monday - keep those fingers crossed! He is back in isolation so mom gets to wear those beautiful long sleeve yellow aprons & purple latex gloves at all times. Fun times! :)

In summary...MRI results showed the tumor has not gotten bigger. Bone is permanently damaged. Drs, dad, & family are all feeling good that the chemo seems to be producing positive results (we know, daddy, it totally sucks while you're going through it). They are going to decrease the pain meds even more. He has 2 more rounds of 3 day (in the hospital for 4 - 7 days) chemo treatment. Starts radiation after the 2nd round. Radiation is for 7 weeks.

Heeeeeeeere's the annoying daughter....please try to refrain from calling mom & dad for a few days. It's not easy for either of them to talk on the phone while they are in the hospital. We know it's difficult, but please know that we will communicate everything on the blog & it's very much appreciated (just one less thing for them to worry about).They would love to communicate via the blog & email (much easier because they can answer when the time is right) - both will be checked many times throughout the day! By the way, dad says "this thing is @$#*!!!!"

Thank you thank you thank you to all of you. We can't even begin to tell you how much we appreciate all your thoughts, prayers, love, support, cards, words, & you & your families. Without each & every one of you, we would all be lost. You have all offered so much of yourselves & your lives...dad has the most wonderful support system. Please know that a day doesn't go by that you each aren't thought of & appreciated. Your friendship & words are a very precious gift, so thank you, from the bottom of our hearts.

January 14

2008-01-14T18:40:00.000-08:00

Spent the day running errands with my wife. Didn't have a very good night sleep last night, too many thoughts on my mind. This may be my last blog for a couple of days as I will be checked into OHSU for my next round. I will have to leave it up to my daughters to add any entries. Picked up a new electronic Guesstures game to play with our daughter and son-in-law (Tiff and Andy). While Kath cooked dinner, Andy and Tiff went on a walk with me. I have been fighting queasiness all day. Steak is still the only thing that appeals a little bit to me. I had a bowl of ice cream with Tiff and that didn't even taste that great. Looking forward to dinner tomorrow night with my oldest daughter and my youngest son. Chris will be working so hopefully we can make up a plate for him.

Hope all is well and I look forward to reading all of your comments during my next round beginning on Wednesday. Take care!

January 13

2008-01-13T17:09:00.000-08:00

Had a wonderful night with my daughter and son-in-law, Tory and Chris, friend Bill Rupp, and wife, Kathy. We played games (Password and Scattergories) until midnight. Fun just kicking back and laughing. Went on a great walk with my scummie, Big Buck. Nice to see him and catch up. Later my buddy Barry stopped by and helped me cut up some wood in the backyard. Traveled to Albany to have some lunch at Costco with my mom. Enjoyed reading the comments on my blog. Spicy food does sound good, Linda. Problem is that I never know if it is going to taste good. I just want to get off this medicine and get my taste back. Thank you all for checking on me.

January 12

2008-01-12T15:59:00.000-08:00

I just got back from spending three hours at the Wilsonville Costco with my mom, my brother Brad, son Michael, daughters Tory and Tiffany, and my wife. Like my younger daughter said, only the Careys can enjoy spending three hours at Costco shopping, eating, and visiting. Love spending time with my family. We started the day off with my kids running 7 and a half miles while Kath and I walked a much shorter course. After I got home, I was able to find a break in the weather, so I could rake a few leaves in the backyard. Exercise is something that keeps me going. Like I said, I am not much for sitting. Did watch a bit of the OSU basketball game until I couldn't stand it any more. Let's just get this 0 and 18 season over with and on to baseball. For the positive out there, we might win a couple of games, but I don't know where. We don't exactly have a home court advantage. How do you have that when the attendance is only 3 to 4 thousand and you can hear a pin drop. I wanted to thank cousin Bruce and his new wife, Becky, for the comment. I would have loved to have been at the wedding, but unfortunately was getting my second chemo treatment. Look forward to seeing you both at a reunion. Kath and I are finding out that there is very little on TV and especially the weekends. Pretty rough when you are just sitting down trying to watch something entertaining. The Seahawks and Beavers sure did not provide it. I have been having a hard time finding something to eat that has taste and sounds good. Still it is steak and Tom's candy that has the slightest taste and appeal to me. Pretty rough when pizza, ice cream, and the like does not sound that good. I look forward to when I am done with all treatment and off this medication, so I can again taste everything. Hope all is well this weekend with everybody.

January 11

2008-01-11T19:41:00.000-08:00

Finally the weather cooperated with my walks today. Much easier not having to carry an umbrella. Great walking with Reed, Barry, and Carl the past two days. Looking forward to tomorrow where my son and two daughters (Michael, Tory, and Tiffany) are running from the Wilsonville Costco and my wife and I are walking from there. After our respective run and walk, we are meeting back at Costco for shopping, lunch, and visiting. Great way to spend a Saturday. That night, Bill Rupp, my daughter Tory, Kath and I are having dinner and then playing some word and board games. Love all the activity. Look forward to walking with vBig buck (Corky) this Sunday. Sorry I was not arpound to walk with you today, Tom. I also appreciate hearing from my computer challenged friends via slow mail. Thanks especially to Sue and Chuck for your special card. Nice to hear from those that have gone through this process and done so well. I plan on joining those successes!! Tom, your candy is now officially gone! It lasted an entire three days and that was it. What a great way to help keep the weight on. Must be 100's of calories in every bite. Just went to the scales and am registering 176.5 pounds right now, so that is holding constant. Guess I'll have to find a replacement now for Tom's almond cluster rocha candy! That will be a hard thing to do. Kath and I have been spending our nights watching episodes of Mash and Andy Griffith. I love the comedies and try to stay away from the serious shows. I do love the old comedies and am not much in to the new shows. Everyone have a super weekend!

January 10

2008-01-10T09:14:00.000-08:00

My son, Michael, has beem getting after me for not writing in my blog everyday. I think I will start filling it in every other day unless something comes up. My big thanks again to Doug, Mike, Carl, and my daughter Tory for getting me out on walks the past few days. I am tired of this rain and look forward to a period of dry weather. Keep the snow in the mountains, but give us sun in the valley! A special thanks to Tom Cuttsforth for having a package of Almond Toffee Chocolate candy delivered to my house. The note said that this should help keep the weight on me. It is delicious! Thanks again, Tom. After my 10:15 walk with Carl this morning, I will be making my daily Costco trip with Reed at 12:30. Since I have to keep the weight up, I always grab a slice of pizza from their food court, whether I want it or not. Bill Rupp had dinner with us last night. Always nice to have friends over. He and my wife played Password forv four games while I gave the clues. Score Kath was 4 and Bill was 0. Better luck next time, Bill. I'm always trying to stay busy. Cleaned my roof and gutters off yesterday between the rain showers. Weight is still good at around 175 pounds. Kath has now finished all that she needed to do to make the house ready to show. Now hopefully someone will see it and want it. I am ready to live in a smaller house. We plan to stay in this general area because we love it. Hopefully all will work out. Until later!

January 7

2008-01-07T21:28:00.000-08:00

Progress still seems to be going well. I am so blessed to have friends that are willing to walk with me. Barry, Carl, my daughter Tory were able to motivate me the past two days. I am excited to get to walk with Doug Eaton tomorrow and Mike Strickling on Wednesday. Barry is starting me off again tomorrow with a walk at 8:30am. Today's weather was perfect during the day. Although I am a native Oregonian, I am getting real tired of this constant rain. Guess I go more for the sunshine! My appetite/taste is really up and down. I have a taste for certain foods, yet others still taste very bland. Steak is still the best. I weigh myself several times each day to constantly stay where I need. Currently I am trying to stay between 170 and 180 pounds. At 9pm, I was 176, so feeling good there. I am trying to eat four different times a day to make sure that I put on enough. Carl took me to Costco tonight, so I had a 7pm hotdog to top the day off. I feel good that my wife finally gets to rest. In 24 hours she taped the dining room, primed it, and finally painted it a sage color. The house is now ready to be shown thanks to her. If you give her a project, you better stand back because she will stay after it until it is done. Been hitting Costco twice a day. Feels good to walk around the store with no real agenda. On a first name basis with most of the employees there. Several of them joke that they have a table reserved for us. Hope everybody has a good week!

January 6

2008-01-06T11:21:00.000-08:00

This morning finds Tiff and I walking in the snow again, taking Bailey (her puppy) for a walk. I am pleased to announce that I have put on two pounds today, I weigh myself three times a day and as of yesterday at ten in the morning I am exactly two pounds heavier. This is after a great breakfast of eggs, cheese, toast, orange juice and cocoa. Pastries are still off limits to me; they sound horrible. Brother Brad came down and went for a walk with Tiff, Andy, Kath and I. Walks continue to be the highlight of my day because I get to be outside and it does wonders for my mental outlook. Kath and I beat Andy and Tiff at Password last night, stayed up late to get a few games in before bed. I had a good night sleep and I know this because I woke up at 4:30 and 8:00 because I sweat the bed so badly we had to change all sheeting. It is always tough to get a good night sleep because I do sweat the bed and if I don't sweat the bed then I don't have a good nights sleep. It is a catch 22. Kath and Andy textured the wall this morning. We are continuing to get the house ready for someone to buy. Again, I appreciate hearing comments from my family and friends. I continue to do well and we are witnessing a monumental occasion right now. Kath is sitting on the couch relaxing!!! Granted she is fidgeting her leg right now, which is a common thing. Another positive is that I have cut back on all medication and I am only taking the nausea medication as needed.

Thanks and have a great week everyone!

January 5

2008-01-05T16:49:00.000-08:00

Sorry I have been out of touch the last few days, but I have been enjoying my time with my daughter, family and friends. The time seems to have flown by and I have forgotten to keep in touch. My constant battle with gaining weight continues. last night I ate two steaks, two helpings of cheese mashed potatoes, and two helpings of broccoli and yet I still lost a pound. Monday, Costco has scales on sale and I intend to keep a close watch and monitor my weight with this new scale. I appreciate those people who have asked to go on walks with me, consider yourself on, I am ready to go and walk. I am continuing to average three to four miles a day. Todays walks were gorgeous since Oregon decided to let up on the weather a bit and we had dry weather. I got a kick out of comments sent, especially all of the Pro Beaver statements; like Reed said he felt like he entered a Beaver Chatroom. By the way; how do you go into double overtime if the other team only has two players left to play...only in Beaverland. As for my health; I am feeling great. I worked on the yard today; raked leaves while chatting with my daughter Tiffany, took down some of a deteriorating fence in the yard and made two trips to Costco. I did feel the ill effects of a 3.5 mile walk with Barry yesterday, but everything else has felt great. Thanks again to Barry for getting our dining room into shape to show as we are looking to sell the house in the future. Again, thanks to Carl for being ready to take me on walks and to keep me active. I look forward to walks this week with Doug and Ken and my usuals. And a special thanks to my wife for preparing high caloric, yet very tasteful edibles. I don't know how she keeps all of these pills in order. She keeps track of everything, it blows me away. Tonight I look forward to another great meal, a walk with my family and some password with Tiff, Andy and Kath. As most people know me, it will blow them away to realize that the only thing that sounds terrible to eat are pastries; usually one of my staple goods, I can't stomach them now. In the past there was nothing like a good donut to keep me going in the morning. (donut in staff room!!)

I also want to thank my mom for making me her famous homemade chicken soup and driving it down for me. I love you mom. Thanks again for all of the positive comments. I will continue to keep you informed.

January 3

2008-01-03T11:53:00.000-08:00

Day two at home finds me with a pretty good night's sleep (as good as you can get when you have to get up every 4 hours to take medication.) I really want to thank my bud Carl and my daughter Tiffany for both going on walks of 1.3 miles each with me during the torrid rains yesterday. Thanks to my son Aaron for stopping by top spend time with me late last night. I love you, Aaron. Big thanks to my bud Barry and again my daughter Tiffany, for both going on a 3.5 mile walk with me today. I am feeling pretty good except for stomach pain caused from indigestion. Having problem now processing the food that I am being fed. Seems that if it is not one thing, it is another. I plan on continuing to work at gaining weight and getting exercise from walkiong to gain strength. Thanks so much again for all your support. What would we do without family and friends!

Back home again, January 2

2008-01-02T14:20:00.000-08:00

Heeeeerrrrrrreeee'sssssss Ronnie! Let's just say that the past six days have been less than a walk in the park. Once again, I reacted to a certain drug in the chemo process. Bottom line is that now I am somewhat normal (as normal as I could be for me) and am working at getting it back. Positive signs are that my blood readings and vital signs are all strong. I slipped in weight however, losing 12 pounds. I am working at eating what I can of greasy, decadent foods to get those pounds back. Will start up my daily walks again. Spirits are high and thanks to all those that responded to the blog. I didn't feel like reading them until this morning, but when I did they brought smiles, laughs, and tears to me. Thanks so much for the shot in the arm. Thanks also for my very protective daughter in keeping the blog updated. I love you, Tory. Also thanks to my other daughter, Tiffany, and her husband Andy, for the pedometer, so I could keep track of my miles. Love you both! To my son, Michael, thanks for the football updates during this bowl week. I love you, son! Thanks to everyone that have been following my progress. It really helps. I will now be home until the 16th. At that time I will have an MRI and decide what the next step will be. Either one more chemo or radiation. At least I will not be in a hospital away from everyone for two weeks. Love and thanks.

A little more info...

2008-01-01T14:43:00.000-08:00

Well, dad & mom are home safely.

Dad's not feeling up to par (this would be an understatement) & is comfortable at home with just mom right now. We will let you know when he is up to phone calls & visitors. No food or drinks sound good. He's supposed to eat VERY bland food to keep his stomach as settled as possible. He still feels nauseous & the Dr said that is would last for awhile.

The last time he came home from his chemo treatment - he is much the same today as he was then. The chemo has caused him to be unsteady on his feet & he isn't eating much of anything. He also isn't (& wasn't) very social because talking & visiting caused those painful/annoying hiccups. The hardest part for dad (& all of us) is that it was easy to forget all the challenges the 1st chemo treatment brought...but Dad, you'll get through these rough patches again.

So (here comes the annoying daughter part), please do not stop by mom & dad's & please do not call them. It's hard for mom to talk on the phone (it's difficult for her to keep answering everyones questions & to rehash all that is going on) & dad wakes up when the phone rings. We will let you know when they are ready for phone calls & visitors. We think it was about a full week before dad was up to it (& this time he was sicker, so it may take awhile longer this time). Sorry for the bluntness, but we are trying to look out for mom & dad & do what's best for dad's speedy recovery.

What you can do, is keep saying hi via the blog or email or snail mail. Mom does read the postings/emails/cards to dad & they both appreciate the distractions!

Happy New Year!

2008-01-01T12:06:00.000-08:00

Well, don't have much to report, but if any of you are like me...you are wondering if Dad's coming home today.

I am happy to report (after much deliberation - should I call, should I not? - I bit the bullet & called) that they are heading home. Dad answered the phone & said mom can't talk while driving (good advice). He said that they are heading home. He also informed me that it would take several days until he feels right again. He told me that mom will call me when they get home & I will give you all a more in-depth posting at that time. But...the good news...all those toasts, glasses raised, & positive thoughts have sent dad home!

New Year's Eve

2007-12-31T14:20:00.000-08:00

& what a cruddy one it has been....

Last night...dad started to get sick. The nurse gave him some intravenous meds to stop the vomiting. It seemed to have helped. The nurse told us that, usually, the severe nausea/vomiting starts during the 3rd chemo treatment. Aren't we surprised...it's not supposed to happen yet, it's happening to dad. Shocker. Our positive thinking...at least it shows that something's happening in his body & it's happening quicker than usual...good sign (even though it's a much less than enjoyable sign).

As of yesterday, they were thinking that Dad was going to be released this morning. After speaking with mom this morning, they are going to experiment with some different anti-nausea meds & then re-evaluate later this afternoon (my guess is that he'll stay overnight b/c he was sick most of the night & morning). Mom said that dad's pretty out of it. As of a few hours ago, dad couldn't even hold down any water (hang in there dad & mom!) - poor guy, as if this wasn't hard enough there has to be another layer. We are keeping our fingers crossed that they find some meds & quick so that dad can resume his walks & writing on his own blog! On the other hand, we hope the Drs don't release him before this is under control so that he can enjoy his time at home.

I'm right there with Mike & my little brother...this chemo has got to be doing something to that dang tumor if you feel this horrible! On the bright side...they reduced his pain meds (a few days ago), & he still feels no pain (in his sacrum - obviously not the rest of his body). It's awesome!

We hope that tomorrow & the New Year bring dad home feeling better than he has these past few days.

Happy New Year's to all of our family & friends! We hope you have a wonderful one & are able to spend it with those you love. We all are truly blessed to have each & every one of you thinking of dad, praying for him, sending him well wishes, & just being there for both mom & dad in whatever capacity you are able. What a gift you are to our dad, mom & the rest of our family.

Eve of going back home

2007-12-30T15:19:00.001-08:00

Well....today brought on another round of complications...

Dad reacted to the isowhatever, again. Last round, this drug was given over the course of 2 hours (the usual dosage/time frame). It's the drug that caused severe side effects (tremors & confusion). Last time, they stopped giving dad the dosage partway through the 2nd chemo bag (there should have been 3 bags given). This time Dr. Ryan decided to give the isowhatever over the course of 24 hours, in hopes of eliminating the side effects.

Dad made it through the bulk of it this time. About 1:00pmish, he sat up to eat his lunch of chef salad & broccoli. When he sat up, he had the shakes pretty bad. He couldn't even hold onto the silverware. The Dr. on call (along w/Dr. Ryan's suggestion) stopped the isowhatever drip (there were only 3-4 hours left of it). He is now receiving some really cool blue stuff to counteract the side effects. The great thing was that about 10 minutes after they stopped the drip, dad's shakes went away.

Now that he is no longer receiving the isowhatever, he gets to go home much earlier. So, he will be done receiving all the meds intravenously at about 3:30am. He will be discharged (as long as OHSU is swift - we haven't seen it up until this point) early afternoon!

Dad's been resting his eyes...all day. In the words of mom...he's just like Santa. He knows everything! He hears & sees it all, nothing gets by this man. How did we ever get away with anything as kids? :) We did share some good disciplining stories today...Uncle B w/comic books getting swatted while dad fake cried, me (Tory) thinking it funny dad was spanking me at such an old age & then realizing that when dad put his mind to it (of course the tongue was out, those of you that know him well enough to know the tongue goes hand in hand w/deep concentration) he really could hurt & elicit real tears, not just giggles.

Thanks again for all the comments, emails, & thoughts - the day is crawling. Truly 1 minute feels like an eternity, so those thoughts are making the day pass a little quicker.

Tonight...

2007-12-29T19:39:00.000-08:00

Well, what a fake out this morning was....
This morning was FABULOUS. Dad was in great spirits, went walking with Car, Tiff & Andy were here, Uncle B came, lots of chatting, joking, and then....

Everyone left at the same time & the emotions of chemo started kicking in. Dad started getting nauseous & frustrated at the enormity of the situation.

Uncle B (thank you so very much as we know your shoulder is not your friend right now & is making life a little difficult) brought dad & mom some pizza & stayed to visit a little longer. Tina also came bearing cookies (does she know dad well or what) & walking shoes. Unfortunately dad wasn't in the spirits for a walk (will definitely take a rain check on that one). She stayed & visited a bit.

The nurses finally gave dad a pill to help ease the emotions & gave him a shot to reduce the nausea.

He's now sleeping soundly...yes, the snoring is in full force...it's great. We are hoping that it lasts all night!

Earlier in the day, in dad-like fashion...he wanted a shower. The nurse informed him that it would postpone his departure time by a half an hour (all the chemo bags would have to be disconnected the entire time)...guess what dad decided...yep, no shower. Let's get out of this joint as QUICKLY as possible!

Here's hoping that the next 24 hour set of chemo bags goes quickly & smoothly (on the emotions & belly). We know he's anxious to be writing on his own blog, although, secretly I think he likes having his own personal scribes.

December 29

2007-12-29T09:11:00.001-08:00

Good morning everyone. I have made it through the second night; just waking up frequently to get rid of all of the fluids they are giving me. I don't have a problem getting back to sleep though. As last time, the chemo is making me get the hiccups which don't feel so good and are extremely frustrating! I have found two methods that seem to work together to get rid of them. Drinking water upside down seems to get rid of them and if I don't talk too much they don't come back. I also have the tremors and the doctor just came in and checked them out. He didn't seem too worried because they are not as bad as last time. The medication has also caused my face to swell a good amount, I guess I am just getting ready for the Alvin and the Chipmunks movie, but not to worry, I am still handsome. {That is what Tiff said anyway:)} It made my morning though to wake up and have all of your comments read to me. Thank you for that.

The Doctor just came in and informed us that the chemo should finish up late tomorrow night and then the rest of the stuff should finish Monday and I should get to go home Monday night. Yay!

Last night I had five different lines of medication being fed into me through the picc line. My infusion pole is getting heavier and heavier so when I go on my walks I am getting a bit more exercise in. I am looking forward to Carl coming up here today to go on a walk with me. Maybe we can get in a couple of miles today as well. We ended up making 132 laps around the floor yesterday, but I think I should get bonus points for pushing the infusion pole with me.

I did get a chance to watch the Beavers play, maybe I would have enjoyed it more if I wasn't so coherent, Car. But I did have Barry, my wife, and Tiff here to provide me with the excitement I needed. However, a bowl win is a bowl win. Next year they will be talking about Riley, who has won four bowl games, they wont be saying how pretty they are, but that he has won them.

Thanks again for all of the comments. They really do brighten my day.

impressive...

2007-12-28T10:54:00.000-08:00

We all know my dad and know that you never give him a challenge. He is the most motivated person I have never known and he takes any challenge on with determination. The nurses said that 44 laps around the floor equaled a mile. Put this with the fact that the doctor told dad he should get up and walk around and you are just guaranteeing that dad will walk the 44 laps. Not only that, but dad has gone and done it again, he impressed the nurses around here by not only walking the 44 laps needed to make a mile, but by walking at such a fast pace they couldn't believe he was already coming back to them.

We are having a good day except for the fact that the food is not that wonderful here. We met with Doctor Ryan and he was surprised that dad's pain level did not increase with the decrease of his pain patch. He does have a bit of a tremor in his right hand so they are just going to keep an eye on it.

Thanks again for all of the comments, they are appreciated by all of the Carey family.

December 28

2007-12-28T09:01:00.000-08:00

After a fitful and apprehensive day of waiting in the hospital they started my chemo at 10:00 PM. As it turned out it was an excellent night; other than having to wake up and use the bathroom hourly. We are in a double room giving us more space and since I am in quarantine I am the only patient allowed in the room. The nurses were great and allowed Kath to use the second bed and stay the night with me. My hopes are that I will feel this great for the rest of my stay and I hope my good aura carries over to the Beaver football team and they are able to have a good night also. Thank heavens my daughter rescued me this morning and brought doughnuts because the food is anything other than delicious. For dinner my wife and Tiff are going to rescue me again and get take out. The nurses say I am being spoiled, but I figure I deserve it, as does my family :). They have changed my treatment and are going to be giving me the chemo at a slower rate this time which means I could be here through Monday or Tuesday. This is worth it if it treats me this wonderfully and I have my lovely wife to look at every day and at least I don't have to drink my own pee like Bear; right BC? Thanks for all of the comments yesterday, they really helped me when I was feeling down.

December 27th

2007-12-27T12:17:00.000-08:00

I am sitting at OHSU right now with my dad and mom in the waiting room. (this is Tiffany) We met with Dr. Ryan this morning after some hot chocolate and two walks around the building. Dad has gained an additional three pounds!!! His lab results are good, other than the fact that he is a bit anemic. They said that it is fine, they will just keep an eye on it. His other tests did impress the doctor though. Dr. Ryan was also impressed with the mileage daddy is putting in...he is an animal! The doctor said that walking should be the only exercise he should be doing right now so as not to strain his sacrum. We get to reduce the Fetanoyl patch since his pain has minimized so hopefully this will help with some of his other feelings.

Dad did impress us all though by throwing aside his fear of heights and riding the tram...TWICE! We then headed to the cafeteria where dad and I shared a hamburger and fries (Delicious!) and he shared soup with mom. Lots of different foods sounded good to him so we will making cafeteria runs for him! We are waiting for a room right now since our lovely doctor's office neglected to reserve us one...they had no records or anything saying we were here for a room. We are waiting for his office to call up here and get us where we need to be! Right now we are sitting here in the waiting room looking at the snow so at least we have a beautiful view!!!

Dad sends his love to everyone out there. We appreciate all of your support and comments. Keep them coming because it is nice to read them; thank you! We will keep you updated and see you soon! Can't wait for more walks! :)

Eve of going back to OHSU

2007-12-26T20:57:00.001-08:00

Tomorrow I go back for my second round of chemo at OHSU. I will probably be out of blog circulation for awhile, unless I feel a lot better than the first session. I hope that I will be awake for the Beaver game on Friday. My family will be at the hospital with me again. I really thrive on their support. It gets very lonely in the hospital room and I need their support as well as yours. Thanks again for your thoughts. Chemo is the roughest part of this journey. Together we will make it through however. It will be tough not walking while I am there, but I plan on getting right back at it when I get home again. Here's to a great new year with lots of sunny miles!!!

Fun Christmas with the Family

2007-12-25T23:32:00.000-08:00

Well there is such a thing as too much fun that you can not settle down afterwards. That is what has happened to me. Here it is almost midnight, I've tried to go to sleep twice, but my mind and body just won't slow down for the needed sleep. I had so much fun going on walks with my children, eating an incredible meal fixed by my mom, wife, and Ardath, trading presents with all the fam (my son, Aaron was the big winner, and nice necklace BC - we play the cutthroat gift exchange in our family). It was so great telling new stories and sharing old ones. I hope all of you had as much fun as we did, but I also hope that you were able to get to sleep. On the positive side, the house is getting cleaned with all my excess energy. My daughter, Tiffany, and my two son-in-laws are showing up in about 9 hours to help take the wall paper off the dining room and paint it a new uplifting color. For those that don't know, we have just put the house back up for sale. A 3,500 square foot house with five bedrooms is just getting to be too much for Kath and me. We don't even go in six of the rooms anymore. So we have been upgrading a few spots. Even if we don't sell it, it will look nice for us. I also think the lack of sleep has something to do with me being a little nervous about going back for the second round of chemo in two days. Send those positive thoughts my way and help me go through this session quickly. I will be thinking about all of you. Let's all start thinking about a great new year now! Also "Go Beavs and Go Ducks!"

Merry Christmas

2007-12-25T10:38:00.000-08:00

I just want to wish everyone a merry Christmas! I hope yours is as good as mine is, because we are having a great one.

Christmas Eve

2007-12-24T19:30:00.000-08:00

First my thanks to Carl for our two mile walk at 7 am this morning. Secondly my thanks to Barry for our two mile walk to the post office at 1 pm (even though they were closed) Then thanks to my wife for our two mile walk Good mileage today! Just want to wish all a Merry Christmas! Enjoy your day tomorrow! I know I am looking forward to spending time with my family! Morning and breakfast will be with my entire clan: Kathy, Tory, Chris, Michael, Amber, Aaron, Tiffany, and Andy. Then afternoon with all my family plus my mom, my brother Brad, my nephew Brad Jr., and Ardath. I am really looking forward to it all!! It will give me strength to start the second round on the 27th.

another December 23

2007-12-23T20:31:00.000-08:00

I wanted to thank all these individuals that have lifted my spirits on my blog: Linda Young, John Bugni, Mark Madland, Jeremy Guill, Doug Eaton, Jon Carey, Tina Loeffler, Lindell and Ernie Johnson, Tom Cutsforth, Brad Carey, Beth and Mike Strickling, Dick and Sharon Langdon, Michael Carey, Glen Clark, Jim and Linda McGough, Sue Thompson, Reed and Kelly Langdon, Harold Leeson, Carl Nelson, Thom and Carol Roberts, Jefferson Starr, Chris Gross, Judy Folden, Big Buck Fallin, OJ, Kary Daniels, Dar Luster, Hilda, and Tami Menold. Thanks to all that sent cards: Gary Sackley, Bruce Carey, Corky and Cathy Fallin, Sue and Chuck Cammack, Dr. Tina Sedlack, Paul Massee, Jennie Gilchrist, Nancy and Dan Heer, Kathy Sansone, Doug Eaton, Tami Menold, Chris Gross, Connie Platz, Phil and Audry Bay, Marcy Jefferson, Ardath Flomer, Michelle Howard, all my friends at Le Griz, Bill and Janet Long, Linda Gray, Stan and Ruth Holme, Barry and Betty Jahn, Dick and Rosemary Shanks, Jeanette Nunnenkamp, Sue Hill, Sumpter staff, Cathy and Scott Carnahan, Sandy Bartruff, Debbie Eide, Gwenda Rice, Brad Carey Jr., Deanie Anderson, WOU staff, Gloria Flager, Wendi Racine, Rob and Marcia Nichols, and Lynne Lindsay. I know this is not everyone and apologize for those that I have left off. I am trying to keep my mind bright, but occasionally I miss some. With this many people pulling for me and sending positive thoughts my was, how can I lose? I can't! I will win!!! Thanks again!! Love yoyu all!

December 23

2007-12-23T20:21:00.000-08:00

Thanks again for the comments. I've had a good night and day. Thanks to my wife, Jefferson, and Reed for helping me put in 6 miles today. No thanks to the weather since it poured every time I was out for a walk. Even saw the storm drains overflowing. Here is hoping that tomorrow brings better weather. Thanks to my kids I have been enjoying looking at the Christmas tree. I am looking forward to having dinner with my wife, brother, nephew, and mom tomorrow. All my children will be spending Christmas Eve with their significant others. Then Christmas I get to spend with all my family!!!! I am feeling strong and can't say enough about my wife. If I start tp get low or lose sleep, she picks me up and gets me going. I am very blessed with my family and friends!

December 22

2007-12-22T17:52:00.000-08:00

A day of ups and downs. Slept until 2 am, moved to the floor in front of the fireplace in the living room. Really strange because I have to sleep with the lights on. Got up at 6am, went to Fred Meyer, walked to the post office and then shopped for a kitchen light when they opened at 7 am. I really am fighting restlessness. This is when I have to get a little help from my medication. After about half and hour and a walk, I tend to settle down. I have been fortunate to go for walk with my wife, my son Michael, my daughter Tiffany, and my brother-in-law Bill. While I was out on one of my walks, my children had snuck out, got a Christmas tree, and decorated it for us. That made me really feel great and lifted my spirits because we have not had time to get a tree this year. Once again thanks for vtho0se that commented on my last entry. Nice to hear from Lindell, Ernie, Tina, Reed's parents, Jon, and also the others. Thanks for making my day. Hopefully tonight will be as good as the last part of today.

December 21

2007-12-21T19:04:00.000-08:00

I again want to thank all those individuals that have sent a comment to me on this blog. I can't say enough how much they mean to me and how much they help lift my spirits. Together all of you will help me beat this thing and help make me stronger. Please never stop sending your thoughts my way (I also really love the repeat senders as well as the new senders). As for today, it has been great. The only negative is that I have no appetite and nothing tastes very good. So I am just eating for the calories and certainly not for the taste. Today I was pleased to go for walks with Barry, my brother Brad, nephew Brad Jr., daughter Tory, son-in-law Chris, and finally my wife. Together I put in about six miles. Felt great! The more miles I put in, the better. I may not be running right now, but at least I am going at a nice walking pace. I hope everyone is getting ready for a super Christmas and is able to spend a lot of family time together. Thanks again for all your caring. It is greatly appreciated.

December 20

2007-12-20T17:12:00.000-08:00

Really seems like a roller-coaster lately. The past 24 hours were a flip flop of the day before. Kath and I went to bed at 11pm, after a great visit from my oldest daughter and son-in-law. The was followed by a nice mile walk with my friend Bill Rupp. Felt so good that Kath and I decided to go to breakfast at the casino. Unfortunately that did not sit well with my stomach and it revolted (nice way of saying I threw up). During the day I got sick three more times. Didn't let that slow me down though. Carl came over and we walked for a mile and a half. I visited Jeff, Celeste, and Matthew today. I guess the bottom line is that no matter what hurdles you hit, it just depends on how high you clear them! Each day it amazes me with how extremely important your family and friends are. I again want to thank my daughter, Tory, for setting up this blog. I have been amazed with how many people are checking it daily and sending comments to me. This is such a huge lift for me. I can not express this enough. Thanks to all and you all mean so much to me and my way of life. I love you all!

December 19

2007-12-19T13:08:00.000-08:00

We have to always remember to take the bad with the good. Last night was one of those tough ones. The day went great until about 10 o'clock. I had what can only be termed as an anxiety attack. I could not settle down and I was wide awake. I just wanted to be close to Kath and my skin seemed to be crawling. I finally settled down in bed around 1:30 am. Felt like a little kid, because I slept with the lights on. Was able to sleep until 5 am. Day certainly picked up however. Barry stopped by and put in a new kitchen light fixyure for us and then took me on a mile walk. Had lunce at Burger Ki9ng with Carl and got a surprise visit from my ex-principal, Bill Spivey. Glad gto hear that his cancer is disappearing. I'll plan to be there also soon after my treatments. After lunch, Mike Strickling, old friend of over 20 some years, showed up and took me for a walk of about two miles. It is amazing how my spirits pick up after a nice long walk with a friend! Thanks to all! Plan on visiting Jeff and Celeste with their new son, Matthew later. Tonight, hopefully, Bill Rupp will show up to take me on an evening walk. Good cheer to all! I'll keep you informed!

December 18

2007-12-18T20:50:00.000-08:00

Today has been the best day yet! Barry and I walked from my house to the hospital (about three and a half miles) at 8:30 am to get my picc line dressing changed (I guess I slept a little restless and messed it up). After that Kath, Tory, and my mom went to visit Jeff, Celeste, and their new son, Matthew, at the birthing center. Mom and I had lunch after that. Several hours after lunch, Lynne Beck, an ex-student (sixth grade) and former basketball star on one of my Albany teams, stopped by and took me for another walk (about a mile and a half). To top the day off, my wife (she's an awesome cook) fixed me steak and a baked potato! Needless to say, I did not have a dull moment and everything seemed to go great! Must be all the positive thoughts and e-mails that I am being sent by all my wonderful friends. A big thanks to all those in my Western Oregon family that sent comments on my blog. I miss you all and hope to see you in the near future! Good luck, Glen, onc those last four! You can do it! I hope everyone is getting ready for a great Christmas! Love you all!

December 17

2007-12-17T18:05:00.000-08:00

This evening finds me in trouble with my youngest daughter because I have not updated my blog. Very sorry! My days are going well except for morning nausea. I try to tough it out and not take medication for it, but it is not working. If you forget about that minor problem, everything seems to be going fine. I am getting in about three to five miles of walking a day thanks to my friends. Just finished a brisk 2 and a half mile walk with Barry. Last night, Carl and I braved the rain and put in about two miles. I do love going on long walks with my friends. Nice hearing and telling stories. My appetite is good. The only problem I seem to have with what I put in my stomach, involves the liquids. I really am not feeling good about the liquids. Water, soda, milk, juice - they all don't sound great to me. However *I do force it down. I also spent some time today with my great bud, Jefferson, at the hospital. He and Celeste are the proud parents of an eight pound three ounce young man named Matthew! Congrats on them. We are proud of them. Also today I made contact with OJ, Blackie, Harold, Mike, and CCC. I have been trying to contact everyone via their personal e-mail. Thanks so much for continuing to check on me. It really helps me keep strong. I love you all!!!

Saturday afternoon

2007-12-15T17:17:00.000-08:00

Thanks to Tom Cutsforth (friend of mine since middle school) for driving up from Albany to take me for a forty-five minute walk (just like cross country days with Ralph Rudzik). Still feeling very lethagic, but trying to force myself to eat and stay awake. Went ahead and beat the inevitable loss of hair and had my wife shave me. My son, Michael, had already shaved his for me. Now both my sons and I are light of hair! Hope all of you are having a great weekend. I look forward to visiting with Reed and Kelley tomorrow (Reed student taught in my class many years ago and Kelley was a student in my freshman high school class many, many years ago. Great to have friends from all areas of my life. Finally thanks to Jefferson for watching many hours of television with me last night and helping walk me!! love you all! Ron

Great Harvest

2007-12-15T12:57:00.000-08:00

Kath and I just walked a mile and a half to Great Harvest. Their Marrionberry Scones hit the spot. We then walked back, making it a three mile outing. Chris, the bat wing span is certainly shorter due to lessened flights!! I hope we can for a walk next week. I can't wait to get back to Black Butte at the start of the year. Been awhile since I've seen Thom and Carol. Tina, I will save a walk for you when you get back in the territory. I am really trying to get back on a normal schedule. I will continue to keep you all posted. Thanks for all your thoughts and comments. Ron

Annoying daughter w/stipulations...

2007-12-14T21:28:00.000-08:00

So glad dad is so much better! Obviously, lots of drugs. It's pretty entertaining....

My dad said that he would love to have visitors...please do not stay any longer than an hour. Very important...my mom & dad are way too nice (I'll be the bad guy - cousin Jon, I know you were already thinking it :)) & would never kick you out, so please be cognizant of the time you are here.

The MOST IMPORTANT stipulation....
If you are sick. If you have allergies/allergy symptoms. If you have been exposed to anyone in any way (ie your kids or wife or husband is sick, or has been sick in the preceding week), do NOT come by. This is extremely important. It is vital to dad's health, treatment, & ability to fight this "thing!" Again...do NOT come by if there is any chance you may pass along a virus.

Dad loves walks - day, evening, light, dark, rain, snow, sun, clouds, fogs...he's up for anything. He appreciates anyone that is willing to come by & join him for a jaunt. I do want to forewarn you, dress warmly because you may be out for awhile. Dad may have cancer, but he's still an ultra marathoner. How proud he makes us all (& makes some of us that are a little lazy at times, feel a little guilty)!!! What a role model!

Thanks to everyone

2007-12-14T20:43:00.000-08:00

To all my friends:

I am now up and running (figuratively speaking) thanks to my good bud, Barry. He spent the day getting this (computer) set up for me. Please remember that I am still on several drugs, so my typing abilities are not up to speed yet (Linda and Connie know how fast I am when I am not on anything and they know that the drugs probably will help!!) I will have to break into this computer age verrrryyy slowly. Right now I am typing about 4 words a minute. As of right now, I am able to sleep from about 11pm until 7 am. I am walking about 4 miles a day with the use of my awesome walking stick my brother bought me and I always need a walking partner (anyone interested in walking with me, please give me a call...I love being able to take long strolls with my friends). I am also doing 15 pushups a day. My family is allowed to see me at my house after putting on disinfectant and washing up. I have to be dished up any food and have to eat first because I can't pick up any germs (nasty little things!) I am able to go to Costco and a few other places as long as I don't touch anyone (this is tough because I like to hug!) So if you see me, great, as long as you give me an imaginary hug! I tend to get out in the afternoon, because I tend to be a little nauseous in the morning. I am now just on one painkiller at 9am and one at 9pm. I am set for my next chemo on December 27. After that we will wait for another three weeks to see if this treatment is working. If it is, then I will undergo radiation to finish this "thing" off! The interesting thing about this is that treatment would be a lot easier on me if I was out of shape like the doctors say 85% of America is. The reasoning behind this is because my body (any person that is in as good of shape, as myself) is constantly trying to fight this off - it is in a constant fight mode.

Thanks again to everyone who has sent me cards, emails, prays, good thoughts, & well wishes!

Thank you, again...

2007-12-12T19:53:00.000-08:00

Dad had another great day. They decreased some of his meds, which is a great thing. Nothing new to report. Mom & dad will be getting a new computer in a few days, so dad will probably be posting info until his next chemo & then you're stuck w/my take on everything. If everything remains how it has been the past 48 hours, then we won't post anything (so no worries that something happened).

Dad wanted me to reiterate to everyone how much your comments (& to those of you who are having troubles w/the website - the emails you send me that I pass along) mean to him. He loves every night when I bring them over...it's the first thing he does. It's so enjoyable to watch him laugh & smile through them.

The rest of our immediate family is very thankful, as well. It's so great to know we have such supportive friends & family. It is such a relief to know we have so many willing hands & so much support & love from each of you. From the bottom of our hearts, thank you & we love you!!!

Nothing New, YEAH!

2007-12-11T21:33:00.000-08:00

Dad had his Neulasta shot (it might be that word, it might not be) today. This shot is to replace some of things in dad's body that are destroyed by chemo (for example, his platelets - something to do with the blood count). Tomorrow he goes in for his blood test/check up to make sure things are working correctly.

He had a great day. Dr. appt, shopped (Costco, of course), went for a few very long walks, slept last night all on his own (without the help of meds), was a little loopy (thanks to the meds), spent the day sitting (rather than lying on the bed, which has been his usual position) & trying to cough (some mucus in his lungs & we want to avoid the prospect of pneumonia again) & sounds like things are going great! Such a relief after last week!

To leave a comment...

2007-12-10T21:44:00.001-08:00

Obviously dad is feeling 100% better compared to yesterday. Yeah!

I have heard from many of you (those of you that have contacted me, not naming any names, you were not the only ones) that you can't leave comments....if you go to the bottom of whatever the entry was for the day (or any day you want to comment on) & click on comments (in the white box), a little box will pop up that you type in (it may be at the bottom of all the other comments). You type what you want to say & then at the very bottom there is an orange button (go Beavs!) that says publish post now - click this.

Thank you again for everything! Those comments & cards are truly getting dad through, just as he said.

Its Me, Ron, writing...

2007-12-10T21:03:00.000-08:00

To my friends, scummies, family, and all others that are interested!
I have just finished my first round of chemo and let's just say that it was not much fun. This will be short, but I did want all of you to know how much I appreciate your letters, e-mails, and thoughts. I am going to start contacting individuals via e-mail since I am finding that it is the best way. It is very difficult for me to talk on the phone and I cannot touch anyone (hug, shake hands, etc) due to the type of chemo I am receiving. So I am going to be checking my e-mails frequently and responding. However, I just wanted everyone to know how important you all are to me and how much I have enjoyed your contacting me. Please continue contacting me via this web site that my daughter has set up for me. I am a fighter and am going to beat this thing. Your comments and e-mails will be a big part of my recovery, so please keep them coming. I am very fortunate to have such a strong family and awesome friends, and I know that together we will win the upper hand! The doctors told me that the next few days I will be a little wobbly, but I will fill you in more over the next few days. I love you all and truly appreciate your concern and care! Ron, RC, Cuddler, Ronald, Scratch (or whatever name you know me by)

Day Before Release, Hopefully

2007-12-09T21:15:00.000-08:00

Today was another rough day. It's going to be nice, supposedly, around 1:30am...the last bit of chemo is complete (this go around).

Dad didn't sleep at all last night. Wasn't even able to take a nap today. They are changing around some meds, in hopes of helping the insomnia. He watched a lot of football (the Browns won, go Derek Anderson), went for a few walks, ate well today, & listened to his kids play Skip-Bo. We will be teaching dad the card game when he heads home.

The side effects are definitely kicking in right now. He's been nauseous all day. They are experimenting w/the anti-nausea meds in hopes of finding one that actually works. The nurse did tell us, today, that this is the worst he'll probably feel. Once he gets home she said that he may get extremely fatigued. The dr thinks that dad's nausea will subside with the final drip of chemo. WAHOO (oh yeah, & let's keep our fingers crossed the dr is right)!!!

His blood tests were all positive today - he didn't need any supplements of anything. As of tonight, he'll be released tomorrow (as long as everything tonight, goes as planned).

Thank you for everyone's understanding & not calling, it's been a huge help for our mom, right now. Hopefully, Tuesday, dad will be feeling a little more like himself. He'll be in his own home & surroundings, which we hope will assist in alleviating a little of the anxiety that's bound to occur when you are laying in a hospital bed day in & day out.

We are definitely proud of him & all he's enduring right now! There are many of us that wouldn't have the courage to fight the way he does & is. As we all know & believe, if this man can run a 50 miler...okay, 9 of them...he can endure this excruciating race.

1st Chemo Contd.

2007-12-08T22:12:00.000-08:00

Today has not been a good day in the Carey family (sorry for the blatant honesty, but we figure it's better to be honest so everyone knows exactly what's going on).

Dad started getting the shakes late last night. Shakes being that he couldn't hold on to anything & had weird twitches in his body all night & most of today. We found out today that it is a very rare (yep, shocker, it happened to dad) & very bad (develops into other severe conditions) side effect of 1 part of the chemo (iso-whatever) he is receiving. He is supposed to get 3 doses, but the dr. canceled the last dose (that was supposed to be administered tonight). When they administer his 2nd round later this month, they will do a lower dosage & hope that eliminates this side effect.

Each time he had testing done, his body was lacking something...it was potassium tonight, so he had to drink a nasty tasting supplement. The nurses say it's typical for most chemo patients to be lacking the potassium, though.

He did eat today. Ate some pizza, ate eggs & cereal for breakfast, eating lots of chocolate boost pudding (was good the first day, now he just chokes it down b/c it is high in protein & that's the most important thing for dad to be eating), ate a burger & green beans for dinner. Unfortunately the food is starting to lose all appeal & the nausea is rolling in steadily. He was nauseous most of this evening - even w/the medication (curbed it for awhile).

Needless to say, it's been a rough day.

Dad will be released Monday afternoon - as long as tomorrow & Monday morning go smoothly. Let's pray for this! Again, thank you for understanding & not calling mom & dad. Mom will call or I will let you all know when dad is up for visitors. Unfortunately, it may be awhile.

Mom says the best thing, the thing that dad appreciates & looks forward to, are the cards you are mailing & the comments that all of you are posting on this website. It truly does cheer him up to hear what you all have to say. He likes the stories, the jokes, the love & friendship he feels from you all. So, from the bottom of our hearts, thank you.

1st Chemo

2007-12-07T23:20:00.000-08:00

Dad started his first chemo session yesterday. Yesterday was great! Mom had lazer eye surgery & Tiff stayed in Salem with her. Dad was up at OHSU w/his 2 brothers & Michael. He was ready to fight. He knows it's going to be much like an ultra marathon. He knows this is only the beginning & it's going to be a long hard haul, but he'll get through.

They checked in first thing in the morning. Dad had a pick line put in, had his "mugascan" (some testing around the heart, I believe - all this stuff starts sounding alike after hearing so many variations of the same types of tests), & then the boys went for long walks around the OHSU complex. The place is huge! Dad checked into his room. They chatted, watched TV, went for more walks, ate pizza (2 different times)...dad had his first doses of the chemo. Uncle Chris stayed with him & slept on an air mattress (much appreciated, thank you!). Dad slept through the entire night.

Sidebar - when you check into the oncology floor at OHSU (for the first 48 hours), any visitors have to wear these yellow long sleeve aprons & purple latex gloves at ALL times you are in the room. When you leave, you dispose of them & have to put new ones on when you come back in the room. Not easy to text, email, to do much of anything really. We have some classic pictures.

This morning, everything sounded delicious to dad. He ate enough breakfast for 3 men. It was great! The nurse made the mistake of mentioning that walking around a loop on the floor 33 times equaled a mile. Yep, you got it right...dad took Uncle Chris for a morning workout consisting of a mile walk. We had pizza for lunch (dad found a new favorite), chatted, watched some tv, & did a little work.

Mom took off her goggles this morning (she had to wear them for 24 hours after eye surgery) & she can see!!! She & Tiff headed up to the hospital after her appt this morning.

Late in the morning...those dreaded hiccups came back. We tried MANY different tricks. For awhile shoulder rubs & ice cream worked. Then it was drinking water upside down (literally). Then came the pushups. Breathing into a paper bag. Drinking water from a cup with a knife. Finally, we resorted to the medication. This, after 5 hours of hiccuping w/the 20 minute rests in between. The nurse informed us that chemo wreaks havoc in the diaphragm & a lot of times hiccups are a natural side effect.

Dad slept for a few hours after that. I'll update more tomorrow when I talk with mom & see how his night went. From the sounds of it, the side effects of the chemo usually start showing up anywhere from tonight, but they could take up to a week to show their ugly side.

He had another dose of chemo tonight at 8:00pm & another 24 hour drip starting at 10:00pm. It sounds as if he won't be released until Sunday at some point. They scheduled his next chemo treatment for December 27th @ 8:45am.

As of right now, mom & dad aren't wanting any visitors or many phone calls. I'll keep you all updated on when things are a little easier - & when they won't mind so much the constantly ringing phone. They are very appreciative of the calls, kind words, & prayers, but it's exhausting sometimes. W/the chemo effects, it's going to be much harder for the both of them. We do go see them every day & we print out all comments or emails we receive for them, so if there is anything you would like us to pass on, please feel free to email or post a comment! Also, when "visiting hours" start taking place, dad's immune system is going to be completely GONE. If you feel any sort of anything...even if you only think it's allergies or if you've been around people that have been sick, please do NOT go by to visit. Dad can't risk getting anything. Thank you!

Again, we can't thank you enough for everything everyone of you is doing & has done. We would be lost w/o the support of our family & friends. Thank you for keeping mom & dad in your prayers & thoughts - right now, it's about all any of us can do.

OHSU Appt

2007-12-04T22:28:00.000-08:00

Sorry this may be a little jumbled or fuzzy...it's been an extremely long day. If you have any other specific questions, please feel free to email me @ toryccarnahan@gmail.com or tccarnahan@yahoo.com

Today we had dad's much anticipated appointment. Dad had his radiation "simulation" first. He was tattooed. Yep, really marked permanently. Hopefully, Aaron can fancy the plain boring dots up a bit, eventually. He was injected w/a dye & was put in a Cat Scan machine thing & was fitted for his "cast." The "cast" (I truly have no idea what it's called) and dots are so for every radiation treatment, the beams go in the exact same spot so the Drs. can zap the tumor good.

After he went through that process (an hour), we met w/Dr. Hung (the radiation expert that will be treating dad). He informed us that after much deliberation w/his peers at MD Anderson, he felt that chemo would be the most positive place to start. He said that if he was in dad's position, it's what he would do. There were obviously many things to think about w/treating w/chemo before radiation. The obvious side effects of chemo as well as putting off the radiation treatment & risking the tumor increasing in size, or spreading. Dr. Hung said that there is a large chance that chemo won't work, but the 25% chance that it does work would make radiation that much more effective. He said that there may be a chance chemo doesn't work (obviously a 75% chance), but radiation will work -there is no doubt, but it's a matter of how much radiation can zap the tumor...the point with chemo is to throw everything at this cancer before starting the radiation.

Armed w/that info & Dr. Hung's recommendation (he's a great Dr. w/an incredible bedside manner, by the way), we headed down to see Dr. Ryan (the chemo expert). Some of us took the tram...others wussed out & drove down to the waterfront because the tram was too scary. Not naming any names...you know who you are. :)

When we met w/Dr. Ryan he was pretty bleak (or should I say that he was just blatantly honest & told us things we have all read & heard before). He reiterated all the negatives, rather than focusing on the positive chances & the positive things the chemo could do for dad. He was very honest (which is definitely a plus - there will be absolutely no surprises when treatment begins), & obviously chemo is VERY rough on your body. It's meant to kill the cancer cells & any possible "micro" cells that are floating around & haven't visibly appeared.

Long story short....dad starts chemo either Thursday or Friday. He will be hospitalized for 3 days (most chemo treatments are administered as out-patient, but nothing but the most intense for dad) for the type of chemo they are administering. He will have his first treatment up at OHSU & depending on how his body reacts to it, the remainder of them may be at the Salem Hospital. He will have treatment for 3 days, go home for 3 weeks & then have another treatment for 3 days. In another 3 weeks, they will run tests to see if the chemo is working (blood tests - these will also be given weekly, especially after dad's transfusions & scans). If it is working, they will continue with this regimen for another 3 sessions, I believe (3 days on, 3 weeks off). After that, they will start the radiation. If the chemo isn't working after the first 2 sessions, they will start w/radiation at that point. The radiation (in either circumstance) will be for 7 weeks. Monday thru Friday for 15 minutes. Where the radiation is (it'll be in the sacrum/back & pelvis), there shouldn't be any severe side effects - which will be so nice for dad!

We did find out today that angio sarcoma is rare...which we already knew...cases exactly like dad's - there has only been 1 recorded & it was in Japan. The Drs. did say that dad's case would probably be published in medical journals...that's how rare it truly is. There are no numbers & chances they can give us because they've never come across it.

Only our dad/husband/friend/mentor/brother/son/etc. would be diagnosed with this. &, more importantly, he's going to beat this! It's going to be a very long tough road for all of us. Remember that none of us are in this alone. We thank all of you for the offers to help out in any way - around the house, grocery shopping, tv watching, cooking us meals, etc. As well as the cards you are constantly sending dad and mom...it definitely is the highlight of their day. Mom & dad have them displayed on their mantle. The words of encouragement, support, & love are vital to both of our parents. We all thank you and are very thankful you are in this amazing support system we have.

2007-12-02T20:57:00.000-08:00

Things are still going well for dad. The blustery day has kept most of us inside & cut a few walks short for dad. He & mom did make it to Costco for a bite to eat & some fresh air. He was unable to sleep last night (unfortunately, after 2 great nights of sleep, a little frustrating), so tonight...he's gonna be exhausted. :) Pain is still under control - dad's still up & moving around, sitting on the couch watching tv.

Just waiting for Tuesday...we find out the course of treatment & we are able to get started fighting this thing!

Civil War Day

2007-12-01T19:17:00.000-08:00

We had a fabulous time watching the Beavers beat the Ducks in Autzen stadium...a lot of nervousness w/some idiot coaching moves that could have cost us the game & a few horrific throws by our QB. But, in the end...the best team won! :)

Dad is still doing great! He had another fantastic night of sleep, went for a few walks, & even sat on the couch for the entire game (he's been lying in bed since this all started).

Dad, mom, Uncle B, Michael, Tiffany, & Tory were all there to enjoy some casserole, hot cocoa, & christmas tree cookies. Yum (& thanks mom)!

Uncle B bought dad a walking stick...very cool & a huge help for dad (sometimes he has trouble with his balance)...to use on his walks that are now extending from houses to blocks.

Background

2007-12-01T09:51:00.000-08:00

As many of you know, after weeks of tests & various diagnoses, dad has been diagnosed with angio sarcoma of the sacrum (the place above your tailbone that all your nerves funnel into). Below, you will find a timeline of events to catch you up...

December 2006 - Dad was admitted to the hospital (stayed overnight) because of a possible bone infection.

He had been experiencing pain for a few months, tests were run & they determined it was the stress of his long distance running that was causing this pain. The Drs. told him to cut back on his exercise & that would, hopefully, cut down on the swelling/pain.

2007 - Pain continued in the tailbone. Dad took small amounts of Advil everyday & this seemed to alleviate the pain.

As the year progressed, the pain continued. The Advil was taken with more frequency & eventually, quit working.

October 18th (Thurs) - Dad went in for more blood tests and another MRI. The Dr. prescribed pain pills (the Advil had quit working at this point). Mom and dad headed to Black Butte for the weekend to relax.

October 19th - October 22nd (Fri - Mon) - The pain pills only worked for a few hours & dad's pain became unbearable. The trip home from Black Butte was long & difficult.

October 24th (Wed) - Dad went in to see an Infectious Disease (Dr. Girard). He went over all of dad's blood test results & then informed us that the results showed an inflammation around the sacrum. 7 different radiologists reviewed the tests & concurred that this pain was a stress fracture. Dr. Girard spent a lot of time with mom & dad inquiring about all of dad's symptoms, how he ended up in his office, etc. He then told dad to head over to the hospital & they were going to check him in. His blood counts were extremely high (indicates an infection) & the pain was unbearable & uncontrollable w/the pain meds at this point.

After checking into the hospital, they tried to find some pain meds that would, at least, touch the pain. After much experimentation, dad could finally rest - somewhat - comfortably. That night there were blood tests, CT scans, & a bone biopsy (the Drs. took bone from 6 different spots in the sacrum).

October 25th (Thurs) - Dad's pain was pretty much under control. Just stayed in the hospital awaiting results.

October 26th (Fri) - Another bone biopsy was performed (they didn't get enough good bits of bone to run enough test). His general practitioner came in that evening & informed dad & mom that in the bone biopsy, they found cancer cells & that tests would be run to determine the type of cancer & we would hear the results on Monday.

October 27th - 28th (Sat - Sun) - A very long weekend spent at the hospital. Denial. Frustration. Stress. The entire family & many friends visited & watched football. We made a great time out of a horrible situation.

October 29th (Mon) - Oncologist came in & told us more tests were needing to be run. We asked questions & had some answered, others weren't able to be answered until more results came in.

October 30th (Tues) - Dad needed an open bone biopsy performed. No one in Salem was willing to perform this surgery. Dad was transferred up to OHSU. The Drs. there also specialize in rare forms of cancer & would hopefully be able to determine what type dad had.

November 2nd (Fri) - Dad was released for home. Pain still not 100% under control, but was bearable.

November 9th (Fri) - Bone biopsy performed at OHSU. There is an 8 inch incision & the drs. had to pull away muscle & tissue to get to the bone. The surgery went as well as expected. Dad could go home that night! Many of us hung out in the recovery room with dad & had a good time. Dad was feeling no pain & got up & kind of danced around - lots of laughter.

The next few days were full of intense pain. Not a lot of sleep & a lot of anxiety was experienced, by all. This bone biopsy would tell us what type of cancer dad truly has & what the course of action was going to be.

November 16th (Fri) - Dad has his follow-up appt w/the surgeon. He had his stitches removed & the nurse informed him that it was the best looking incision she had seen.

We were told that dad has angio sarcoma of the sacrum. Only 55 people in the US, per year, contract this form of cancer. The surgeon said it's very rare & OHSU doesn't see a lot of patients with it (oddly enough, there was another patient going through the same thing as dad - but his cancer isn't in the sacrum). The surgeon answered all the questions we had (& was incredibly supportive & honest - much appreciated, especially in a time like this). He recommended we come back up on November 21st (Wed). There was going to be a sarcoma panel & the radiation dr. & chemo dr. would both be there. They would all be able to put their heads together to come up with the best course of treatment for dad.

November 17th - 20th (Sat - Tues) - Very long few days. More questions were written down for drs. Pain was still far from being under control. Experimenting with different pain pills was still going on.

November 21 (Wed) - The day has finally come....we get to find out some real answers...Uncle B & all 4 kids (& 1 pseudo kid) were at the appt. Yep, very crowded room, but lots of ears & support.

We met w/the radiation dr. first. All questions were answered, but we still weren't sure where treatment would be. According to the dr. - where dad's cancer is, it makes things complicated. He told us that he was going to get in touch w/his alma matter (MD Anderson in Houston) to see if dad would be better off receiving radiation from a proton machine (only 4 in the US - 1 in Houston & 1 in Loma Linda, CA). The proton machine has the ability to narrow where the radiation hits. But...with the cancer dad has, there may be no need for it (they use a proton laser when other internal organs may receive some excess radiation from a normal machine, but there are no internal organs around the sacrum that may get in the way - in dad's case).

We then met w/a chemo dr. & he informed us that he didn't feel chemo would touch dad's cancer. He said there were some experimental trials (Michael had found some info on the Internet & inquired about them) that we could look at, but we would use that as a last option - after radiation was completed. We expressed concern about dad's continued pain & the dr. changed some meds around & gave mom some ideas about how she should be flexible to, hopefully, control the pain.

November 22nd (Thurs) - HAPPY THANKSGIVING!!! Dad had a great day, he even cut the turkey!!!!

November 23rd - 25th (Fri - Sun) - Dad got the hiccups...extremely painful! Every hour on the hour & they lasted for at least 20 - 40 min. Miserable!

November 24th (Mon) - 12:30 am, mom took dad to the Salem ER. At 4 am, they checked him into the hospital (w/the Salem oncologists recommendation). A shot was given (to attempt to curb the hiccups) & blood was drawn. When the tests came back, dad was informed he would have to have a blood transfusion.

Lots of drugs...dad was in a haze. Saying some hilarious things he's not going to remember. Still had the hiccups, the pain was there from a shot the night before...20 minutes after the blood transfusion he came out of his haze - read the menu & watched an hour of tv (yep, straight out of the movies, he OBVIOUSLY needed that blood).

November 27th (Tues) - Dad stayed in the hospital, hiccups were becoming further in between, pain was less, frustration - high.

November 28th (Wed) - Another blood transfusion (to prepare his body for the treatments). Released for home that night. Rough day. Still in a bit of pain. No sleep. Nausea every time he ate.

November 29th (Thurs) - Still pain. No sleep. Nausea. Finally found out that radiation would be given in Portland at OHSU. Dr. apologized up & down for not letting mom & dad know sooner (had been discussing w/MD Anderson, dad's results & different treatment options/ideas). Ate dinner, went for a walk, watched hoops, experimented w/some things....

November 30th (Fri) - Dad slept for 7 hours straight last night!!!! Had a wonderful night. Went to Costco w/mom & shopped. Went for a few walks. Helped get Christmas decorations upstairs. Looked & felt great!!!!